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The National Fabry Disease Foundation’s Fabry Family Education Conference

September 6 - September 7

 

This educational conference is tailored for patients and their families. Participants will have the opportunity to learn the latest information about treatment and Fabry disease research. The event will also include activities to help spread awareness about Fabry disease.

 

Keep tabs on the conference website, where logistical details should be posted soon.

Organizer

National Fabry Disease Foundation
Phone:
919-732-2799
Email:
info@fabrydisease.org
Website:
fabrydisease.org
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

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