Events for December 13, 2018

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2:00 pm

The EveryLife Foundation for Rare Diseases’ Newborn Screening Webinar

December 13, 2018 @ 2:00 pm - 3:00 pm

Newborn Screening Webinar/Conference Call Are you interested in learning more about newborn screenings for rare diseases? Then don't miss this educational webinar, which will focus on the importance of newborn screenings and discuss the upcoming renewal of the 2007 Newborn Screening Saves Lives Act. Speakers will include Debbie Jessup, who is Health Policy Advisor for […]

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We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

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Events for December 13, 2018

Events Search and Views Navigation

Events Search

Event Views Navigation

2:00 pm

The EveryLife Foundation for Rare Diseases’ Newborn Screening Webinar

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

“Shades of Psoriasis”: Plaque Psoriasis and Sharing Your Story

Understanding RSV: Why Combatting Ethnic and Age-Related Health Disparities Could Improve Outcomes

We Need Equity and Diversity Within Rare Disease Research

DNA in Color: How Ronya Nelson is Working to Close the Diversity Gap in Genetics - Part 1

Bridging the Diversity Gap in Healthcare

Congratulations to the 2023 Recipients of the Diversity in Lupus Research Awards!

Welcome to Study of the Week. We go in-depth and select a study we think is of particular interest, discussing details, explaining its importance, who may be impacted and lots more!

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