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The EveryLife Foundation for Rare Diseases’ Newborn Screening Webinar

December 13, 2018 @ 2:00 pm - 3:00 pm

Newborn Screening Webinar/Conference Call

Are you interested in learning more about newborn screenings for rare diseases? Then don’t miss this educational webinar, which will focus on the importance of newborn screenings and discuss the upcoming renewal of the 2007 Newborn Screening Saves Lives Act.

Speakers will include Debbie Jessup, who is Health Policy Advisor for Rep. Lucille Roybal-Allard, and Rebecca Abbott, who works at the Office of Government Affairs at March of Dimes.

Registration for this event is FREE.



The EveryLife Foundation
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

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