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Events for May 30, 2020

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8:30 am

The Everylife Foundation for Rare Diseases and Global Genes’ RARE on the Road Rare Disease Leadership Tour

May 30, 2020 @ 8:30 am - 3:30 pm
InterContinental Minneapolis-St. Paul Airport, 5005 Glumack Drive Terminal 1
Minneapolis, MN 55425 United States + Google Map

RARE on the Road: a Rare Disease Leadership Tour March 28th, 2020 Minneapolis, MN The Rare Disease Leadership Tour is designed to give insights and education to rare disease advocates, patients, and caregivers. Learn how to activate your local rare disease community. The tour is a unique opportunity to connect with other rare disease advocates […]

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6:30 pm

CureDuchenne Cares Session: Omaha, NE

May 30, 2020 @ 6:30 pm - 8:30 pm
Fleming’s Prime Steakhouse & Wine Bar- Omaha, 140 Regency Pkwy
Omaha, NE 68114 United States + Google Map

CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families May 30th, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as caregivers. These casual, two hour events can help inform patients about the latest in standards of care and other important information related to Duchenne muscular […]

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