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The Everylife Foundation for Rare Diseases and Global Genes’ RARE on the Road Rare Disease Leadership Tour
May 30 @ 8:30 am - 3:30 pm
RARE on the Road: a Rare Disease Leadership Tour
March 28th, 2020
The Rare Disease Leadership Tour is designed to give insights and education to rare disease advocates, patients, and caregivers. Learn how to activate your local rare disease community. The tour is a unique opportunity to connect with other rare disease advocates and patients, discover ways to tell your story as someone affected by rare disease, and learn how you can help save lives and have a direct impact on public policy.