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The Everylife Foundation for Rare Diseases and Global Genes’ RARE on the Road Rare Disease Leadership Tour

May 30 @ 8:30 am - 3:30 pm

RARE on the Road: a Rare Disease Leadership Tour

March 28th, 2020

Minneapolis, MN

The Rare Disease Leadership Tour is designed to give insights and education to rare disease advocates, patients, and caregivers. Learn how to activate your local rare disease community. The tour is a unique opportunity to connect with other rare disease advocates and patients, discover ways to tell your story as someone affected by rare disease, and learn how you can help save lives and have a direct impact on public policy.

To learn more about the event, click here. To register, click here.


May 30
8:30 am - 3:30 pm
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The EveryLife Foundation
Global Genes


InterContinental Minneapolis-St. Paul Airport
5005 Glumack Drive Terminal 1
Minneapolis, MN 55425 United States
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