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Events for June 27, 2020

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United Leukodystrophy Foundation’s Virtual Family Conference

June 25 - June 27
IL United States + Google Map

The 2020 Virtual Family Conference June 25-27, 2020 This event features live streamed webinars featuring leukodystrophy researchers and relevant content for leukodystrophy patients and their families. The conference will also feature pre-recorded videos and text resources. In light of the ongoing coronavirus pandemic, the event has transitioned from an in-person conference to a virtual one. […]

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8:30 am

The Everylife Foundation for Rare Diseases and Global Genes’ RARE on the Road Rare Disease Leadership Tour

June 27 @ 8:30 am - 3:30 pm
Loyola University New Orleans – Danna Student Center, Audubon Room 6363 St. Charles Ave
New Orleans, LA 70118 United States
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RARE on the Road: a Rare Disease Leadership Tour June 27th, 2020 New Orleans, LA The Rare Disease Leadership Tour is designed to give insights and education to rare disease advocates, patients, and caregivers. Learn how to activate your local rare disease community. The tour is a unique opportunity to connect with other rare disease […]

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