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The Everylife Foundation for Rare Diseases and Global Genes’ RARE on the Road Rare Disease Leadership Tour

June 27 @ 8:30 am - 3:30 pm

RARE on the Road: a Rare Disease Leadership Tour

June 27th, 2020

New Orleans, LA

The Rare Disease Leadership Tour is designed to give insights and education to rare disease advocates, patients, and caregivers. Learn how to activate your local rare disease community. The tour is a unique opportunity to connect with other rare disease advocates and patients, discover ways to tell your story as someone affected by rare disease, and learn how you can help save lives and have a direct impact on public policy.

To learn more about the event, click here. To register, click here.


June 27
8:30 am - 3:30 pm
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The EveryLife Foundation
Global Genes


Loyola University New Orleans – Danna Student Center
Audubon Room 6363 St. Charles Ave
New Orleans, LA 70118 United States
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