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8:00 am
CureDuchenne Cares Workshop: Minneapolis, MN
CureDuchenne Cares Workshops: Hear The Latest From Experts September 26th, 2020, 8:00 am The Workshops program from CureDuchenne are day-long educational events that are oriented towards caregivers and Duchenne muscular dystrophy patient families. These workshops are facilitated by disease experts and clinicians that can inform attendees about a variety of subjects, such as clinical trial […]
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The Glut1 Deficiency Foundation’s Glut1 Parents Zoom Group
Glut1 Virtual Community Gatherings: Glut1 Deficiency Parents Patient Voice in Research - input for survey development to capture patient and family experiences and identify needs September 26th, 2020 The Glut1 Deficiency Foundation is not letting the coronavirus/COVID-19 pandemic stop them from continuing in their mission to build community among patients. Don't miss these opportunities to […]
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The Glut1 Deficiency Foundation’s Child Glut1 Zoom Group
Glut1 Virtual Community Gatherings: Children with Glut1 Deficiency Glut1 Pals September 26th, 2020 The Glut1 Deficiency Foundation is not letting the coronavirus/COVID-19 pandemic stop them from continuing in their mission to build community among patients. Don't miss these opportunities to speak with others patients and learn valuable information about the disorder using the Zoom platform. […]
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