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The Glut1 Deficiency Foundation’s Glut1 Parents Zoom Group

September 26 @ 11:00 am - 12:00 pm

Glut1 Virtual Community Gatherings: Glut1 Deficiency Parents

Patient Voice in Research – input for survey development to capture patient and family experiences and identify needs

September 26th, 2020

The Glut1 Deficiency Foundation is not letting the coronavirus/COVID-19 pandemic stop them from continuing in their mission to build community among patients. Don’t miss these opportunities to speak with others patients and learn valuable information about the disorder using the Zoom platform.

Leaders: Rob Rapaport and Glenna Steele

Please make sure to register for these events beforehand. In addition, you must also be part of the Family Network to attend.

Sign up for this event here.

Details

Date:
September 26
Time:
11:00 am - 12:00 pm
Event Category:
Event Tags:
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Website:
https://bit.ly/2DMrg2T

Organizer

Glut1 Deficiency Foundation
Email:
Website:
g1dfoundation.org
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