The Glut1 Deficiency Foundation’s Glut1 Parents Zoom Group
September 26 @ 11:00 am - 12:00 pm
Glut1 Virtual Community Gatherings: Glut1 Deficiency Parents
Patient Voice in Research – input for survey development to capture patient and family experiences and identify needs
September 26th, 2020
The Glut1 Deficiency Foundation is not letting the coronavirus/COVID-19 pandemic stop them from continuing in their mission to build community among patients. Don’t miss these opportunities to speak with others patients and learn valuable information about the disorder using the Zoom platform.
Leaders: Rob Rapaport and Glenna Steele
Please make sure to register for these events beforehand. In addition, you must also be part of the Family Network to attend.