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Events for October 29, 2020

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The VHL Alliance’s 14th International Medical/Research Symposium

October 29, 2020 - October 31, 2020
Vondelkerk, Vondelstraat 120
Amsterdam, 1054 GS Netherlands
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The 14th International VHL Medical/Research Symposium October 29-31, 2020 Amsterdam, Netherlands This event is geared towards the medical and research community. The conference will feature scientific research presentations on findings related to Von Hippel-Lindau syndrome. Patients and families are also welcome to attend to learn the latest in syndrome research. To register, click here.

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12:30 pm

KrabbeConnect’s Patient-Focused Drug Development Meeting

October 29, 2020 @ 12:30 pm - 4:30 pm

Patient-Focused Drug Development Meeting with the FDA Organized by the National Organization for Rare Disorders (NORD), this meeting will be a critical opportunity for patients to communicate directly with regulators at the US Food and Drug Administration (FDA). This is an opportunity for the Krabbe disease community to articulate their experiences and help the FDA […]

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6:00 pm

Managing Your PNH Live Webinar- Sponsored by Alexion Pharmaceuticals Inc.

October 29, 2020 @ 6:00 pm - 7:30 pm

Managing Your PNH Connect. Learn. Take Action. Live Webinar Thursday, October 29, 2020 Alexion invites patients, families, and caregivers living with paroxysmal nocturnal hemoglobinuria (PNH) to an educational program for the PNH community. Please join us as we bring together patients and families living with PNH. Patient and Caregiver Ambassadors will share their personal stories […]

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7:00 pm

Bristol Myers Squibb’s The MS Mindshift Event Series

October 29, 2020 @ 7:00 pm - 8:00 pm

The MS MindShift initiative offers free educational online events that focus on helping people who live with multiple sclerosis (MS) better understand the critical role that healthy choices can have on the disease. A presentation from Karen Blitz-Shabbir, DO, NYP Brooklyn Methodist on the impact that healthy lifestyle choices can have on MS Personal journey […]

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Intercept Pharmaceuticals’ Learn About Primary Biliary Cholangitis Webinar

October 29, 2020 @ 7:00 pm - 8:00 pm

Learn About Primary Biliary Cholangitis Join us for an online event about primary biliary cholangitis (PBC). Don't miss out on a live Q&A session with a Nurse Educator* and an inspiring story from a Patient Ambassador* who will share their journey with a treatment option used in conjunction with ursodeoxycholic acid (UDCA). To register for […]

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