KrabbeConnect’s Patient-Focused Drug Development Meeting
October 29 @ 12:30 pm - 4:30 pm
Patient-Focused Drug Development Meeting with the FDA
Organized by the National Organization for Rare Disorders (NORD), this meeting will be a critical opportunity for patients to communicate directly with regulators at the US Food and Drug Administration (FDA).
This is an opportunity for the Krabbe disease community to articulate their experiences and help the FDA understand what improvements in treatment would truly look like. This event will involve collaboration from a number of patient advocacy groups, and all Krabbe disease caregivers and patients are encouraged to attend.