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September 2017
The Ehlers-Danlos Society’s 2017 EDS Global Learning Conference
#DazzleVegas Adult early-bird registration: $299, ends July 7 Regular registration: $349, July 7–August 28 Junior Zebra Registration: $175
Find out more »April 2018
The Ehlers-Danlos Society’s European Ehlers-Danlos Syndromes Conference
This conference will be a convergence of disease experts, patients, and professionals to discuss Ehlers-Danlos syndrome and other related genetic disorders. The event will be the first conference that the society has held in Europe, and it will present a new opportunity for experts and patients from across the continent to network and assist each other. Registration for the conference is full for Saturday, but there are still slots available for Friday.
Find out more »September 2018
The Ehlers-Danlos Society’s International Symposium on the Ehlers-Danlos Syndromes
The International Symposium on the Ehlers-Danlos Syndromes “Interaction and signaling: recurrent themes in the molecular mechanisms of EDS.” This event will allow scientists and clinicians to come together to discuss and present the latest findings, data, and research related to Ehlers-Danlos syndromes. Registration Regular = $625 Student = $440 Support Group/Charity Rep = $310 Caregiver = $220 Single Day = $165 Physiotherapy Workshop = $42
Find out more »December 2018
The Ehlers-Danlos Society’s Learning Conference Australia
Learning Conference Australia This conference will combine educational sessions geared both towards health professional and Ehlers-Danlos syndrome patients. The event will also be an opportunity for the patient community to come together to network and share support. Registration Patient Day: $110/$74 (Regular/Student, Caregiver, On Benefits) Health Professionals Day: $259/$148/$104 (Regular/Student Full Day or Regular Half Day/Student Half Day)
Find out more »The Ehlers-Danlos Society’s Learning Conference Australia
Learning Conference Australia This conference will combine educational sessions geared both towards health professional and Ehlers-Danlos syndrome patients. The event will also be an opportunity for the patient community to come together to network and share support. Registration Patient Day: $110/$74 (Regular/Student, Caregiver, On Benefits) Health Professionals Day: $259/$148/$104 (Regular/Student Full Day or Regular Half Day/Student Half Day)
Find out more »January 2020
Karina Sturm’s ‘We Are Visible’ Documentary Screening at Chapman University
'We Are Visible' Film Screening January 12th, 2020 at 2pm Chapman University, Beckman Hall, Room 404 Karina Sturm's life was changed forever in 2010 when several 'invisible' rare conditions such as Ehlers-Danlos syndrome forced her to give up her job as a research associate. She has since turned to studying journalism in Edinburgh, Scotland and 'We Are Visible' is part of her Master's thesis. The documentary focuses on the lives of patients with Ehlers-Danlos syndrome and the challenges that they…
Find out more »November 2020
The Ehlers-Danlos Society’s European Learning Conference
The Ehlers Danlos Society's European Learning Conference November 7-8, 2020 This event will feature presentations from world-renowned experts on Ehlers-Danlos syndrome and related conditions, including the latest in research and treatment. November 7th is Health Professionals Day and November 8th is Community Day. For registration and more info, click here.
Find out more »January 2021
Ehlers-Danlos Society’s Pediatric Concerns in EDS and HSD: Exploring The Impact of Misdiagnosis
Pediatric Concerns in EDS and HSD: Exploring The Impact of Misdiagnosis January 10, 2021 Virtual Webinar Event Hear from members of the Ehlers-Danlo syndrome community who have been affected by a child’s misdiagnosis: delays in care, mistreatment, allegations of child abuse, and the impact on physical and mental health. Click here to get registered.
Find out more »September 2022
The Ehlers-Danlos Society’s 2022 International Scientific Symposium on the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders Community Day
2022 International Scientific Symposium on the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders Community Day EDS & HSD Untangled: Ask The Experts---A Hybrid Conference September 18, 2022 The Ehlers-Danlos Society is delighted to announce Community Day of the International Scientific Symposium on the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders, taking place on September 18, 2022. EDS and HSD Untangled: Ask the Experts is a hybrid event, taking place in Rome, Italy, with an exciting virtual attendance option for people worldwide. This event…
Find out more »April 2023
The Ehlers-Danlos Society’s 2023 EDS ECHO Summit: Hypermobility Spectrum Disorder (HSD) Virtual Conference
2023 EDS ECHO Summit: Hypermobility Spectrum Disorder (HSD) Virtual Conference April 1-2, 2023 The EDS ECHO Summit Series event will be a two-day virtual event that will take place on April 1-2, 2023, and is suitable for both healthcare professionals, and members of the community, their families, and caregivers. The event will cover all aspects of hypermobility spectrum disorders with presentations from leading experts. Please register your interest for this event here. You will receive updates via email and will…
Find out more »August 2023
The Ehlers-Danlos Society’s 2023 Hybrid Global Learning Conference
2023 Hybrid Global Learning Conference August 2-5, 2023 The Ehlers-Danlos Society is delighted to announce 2023 Global Learning Conference will be a hybrid event, taking place in Dublin, Ireland from August 2-5, 2023. This event is suitable for members of the EDS and HSD community, their families, and caregivers, and health professionals. Registration will open soon, please register your interest to be the first to get your ticket!
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