Glut1 Virtual Community Gatherings: Teen and Adults with Glut1 Deficiency The Overcomers September 13th, 2020 The Glut1 Deficiency Foundation is not letting the coronavirus/COVID-19 pandemic stop them from continuing in their mission to build community among patients. Don't miss these opportunities to speak with others patients and learn valuable information about the disorder using the Zoom platform. Leaders: Leslie Holleman, Dana Pottschmidt, Joanna Snyder Please make sure to register for these events beforehand. In addition, you must also be part…

Glut1 Virtual Community Gatherings: Spanish Language Group Q&A with Adult Patients & Families September 19th, 2020 The Glut1 Deficiency Foundation is not letting the coronavirus/COVID-19 pandemic stop them from continuing in their mission to build community among patients. Don't miss these opportunities to speak with others patients and learn valuable information about the disorder using the Zoom platform. Leaders: Chantal Sanchez and Sandra Ojeda Please make sure to register for these events beforehand. In addition, you must also be part…

Glut1 Virtual Community Gatherings: Glut1 Deficiency Parents Patient Voice in Research - input for survey development to capture patient and family experiences and identify needs September 26th, 2020 The Glut1 Deficiency Foundation is not letting the coronavirus/COVID-19 pandemic stop them from continuing in their mission to build community among patients. Don't miss these opportunities to speak with others patients and learn valuable information about the disorder using the Zoom platform. Leaders: Rob Rapaport and Glenna Steele Please make sure to…

Glut1 Virtual Community Gatherings: Children with Glut1 Deficiency Glut1 Pals September 26th, 2020 The Glut1 Deficiency Foundation is not letting the coronavirus/COVID-19 pandemic stop them from continuing in their mission to build community among patients. Don't miss these opportunities to speak with others patients and learn valuable information about the disorder using the Zoom platform. Leaders: Erin Meisner and Maria Rebbecchi Please make sure to register for these events beforehand. In addition, you must also be part of the Family…

Glut1 Virtual Community Gatherings: Australia & New Zealand September 27th, 2020 Patient Voice in Research  - input discussions for survey development The Glut1 Deficiency Foundation is not letting the coronavirus/COVID-19 pandemic stop them from continuing in their mission to build community among patients. Don't miss these opportunities to speak with others patients and learn valuable information about the disorder using the Zoom platform. Leaders: Glenna Steele, Tim & Cindy Oliver, Alison Zerafa Please make sure to register for these events beforehand.…

Fall Glut1 Gatherings on Zoom: Comunidad Hispana October 8, 2022 Our Zoom program provides opportunities for members of our community to meet up with others no matter where we live! These gatherings will provide us opportunities to meet, share, learn, and support one another. Our quarterly meetings for parents are offered in both English and Spanish, and they include research updates, educational content, guest speakers, and social time at each gathering. Pre-registrations will still be required, and as an extra…

Fall Glut1 Gatherings on Zoom: Adult Overcomers October 16, 2022 Our Zoom program provides opportunities for members of our community to meet up with others no matter where we live! These gatherings will provide us opportunities to meet, share, learn, and support one another. Our quarterly meetings for parents are offered in both English and Spanish, and they include research updates, educational content, guest speakers, and social time at each gathering. Pre-registrations will still be required, and as an extra…

Fall Glut1 Gatherings on Zoom: Parents October 22, 2022 Our Zoom program provides opportunities for members of our comGlmunity to meet up with others no matter where we live! These gatherings will provide us opportunities to meet, share, learn, and support one another. Our quarterly meetings for parents are offered in both English and Spanish, and they include research updates, educational content, guest speakers, and social time at each gathering. Pre-registrations will still be required, and as an extra layer…

Fall Glut1 Gatherings on Zoom: Child Glut1 Pals October 22, 2022 Our Zoom program provides opportunities for members of our community to meet up with others no matter where we live! These gatherings will provide us opportunities to meet, share, learn, and support one another. Our quarterly meetings for parents are offered in both English and Spanish, and they include research updates, educational content, guest speakers, and social time at each gathering. Pre-registrations will still be required, and as an…

Monthly Gatherings: Parent and Caregiver Group February 18, 2023 Led by: Glenna Steele and Rob Rapaport Topics: Social time and support - come with questions, topics to discuss, or stories to share! Special Guest:  You! To register, click here.

Monthly Gatherings: Parent and Caregiver Group March 18, 2023 Led by: Glenna Steele and Rob Rapaport Topics: Social time and support - come with questions, topics to discuss, or stories to share! Special Guest:  You! To register, click here.