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July 2019
The Glut1 Deficiency Foundation’s 8th Biennial Conference
The 2019 Biennial Conference The Glut1 Deficiency Foundation's biennial conference is an event that you won't want to miss. The conference will feature a variety of sessions related to various topics related to Glut1 deficiency. The 2019 conference will also include special sessions dedicated to the adult patient experience of Glut1 deficiency. Registration for Glut1 deficiency patients is FREE. For more registration information, click here.
Find out more »September 2020
The Glut1 Deficiency Foundation’s Teen and Adult Glut1 Zoom Group
Glut1 Virtual Community Gatherings: Teen and Adults with Glut1 Deficiency The Overcomers September 13th, 2020 The Glut1 Deficiency Foundation is not letting the coronavirus/COVID-19 pandemic stop them from continuing in their mission to build community among patients. Don't miss these opportunities to speak with others patients and learn valuable information about the disorder using the Zoom platform. Leaders: Leslie Holleman, Dana Pottschmidt, Joanna Snyder Please make sure to register for these events beforehand. In addition, you must also be part…
Find out more »The Glut1 Deficiency Foundation’s Spanish Glut1 Zoom Group
Glut1 Virtual Community Gatherings: Spanish Language Group Q&A with Adult Patients & Families September 19th, 2020 The Glut1 Deficiency Foundation is not letting the coronavirus/COVID-19 pandemic stop them from continuing in their mission to build community among patients. Don't miss these opportunities to speak with others patients and learn valuable information about the disorder using the Zoom platform. Leaders: Chantal Sanchez and Sandra Ojeda Please make sure to register for these events beforehand. In addition, you must also be part…
Find out more »The Glut1 Deficiency Foundation’s Glut1 Parents Zoom Group
Glut1 Virtual Community Gatherings: Glut1 Deficiency Parents Patient Voice in Research - input for survey development to capture patient and family experiences and identify needs September 26th, 2020 The Glut1 Deficiency Foundation is not letting the coronavirus/COVID-19 pandemic stop them from continuing in their mission to build community among patients. Don't miss these opportunities to speak with others patients and learn valuable information about the disorder using the Zoom platform. Leaders: Rob Rapaport and Glenna Steele Please make sure to…
Find out more »The Glut1 Deficiency Foundation’s Child Glut1 Zoom Group
Glut1 Virtual Community Gatherings: Children with Glut1 Deficiency Glut1 Pals September 26th, 2020 The Glut1 Deficiency Foundation is not letting the coronavirus/COVID-19 pandemic stop them from continuing in their mission to build community among patients. Don't miss these opportunities to speak with others patients and learn valuable information about the disorder using the Zoom platform. Leaders: Erin Meisner and Maria Rebbecchi Please make sure to register for these events beforehand. In addition, you must also be part of the Family…
Find out more »The Glut1 Deficiency Foundation’s Australia & New Zealand Glut1 Zoom Group
Glut1 Virtual Community Gatherings: Australia & New Zealand September 27th, 2020 Patient Voice in Research - input discussions for survey development The Glut1 Deficiency Foundation is not letting the coronavirus/COVID-19 pandemic stop them from continuing in their mission to build community among patients. Don't miss these opportunities to speak with others patients and learn valuable information about the disorder using the Zoom platform. Leaders: Glenna Steele, Tim & Cindy Oliver, Alison Zerafa Please make sure to register for these events beforehand.…
Find out more »October 2022
Glut1 Deficiency Foundation’s Virtual Community Gatherings: Comunidad Hispana
Fall Glut1 Gatherings on Zoom: Comunidad Hispana October 8, 2022 Our Zoom program provides opportunities for members of our community to meet up with others no matter where we live! These gatherings will provide us opportunities to meet, share, learn, and support one another. Our quarterly meetings for parents are offered in both English and Spanish, and they include research updates, educational content, guest speakers, and social time at each gathering. Pre-registrations will still be required, and as an extra…
Find out more »Glut1 Deficiency Foundation’s Virtual Community Gatherings: Adult Overcomers
Fall Glut1 Gatherings on Zoom: Adult Overcomers October 16, 2022 Our Zoom program provides opportunities for members of our community to meet up with others no matter where we live! These gatherings will provide us opportunities to meet, share, learn, and support one another. Our quarterly meetings for parents are offered in both English and Spanish, and they include research updates, educational content, guest speakers, and social time at each gathering. Pre-registrations will still be required, and as an extra…
Find out more »Glut1 Deficiency Foundation’s Virtual Community Gatherings: Parents
Fall Glut1 Gatherings on Zoom: Parents October 22, 2022 Our Zoom program provides opportunities for members of our comGlmunity to meet up with others no matter where we live! These gatherings will provide us opportunities to meet, share, learn, and support one another. Our quarterly meetings for parents are offered in both English and Spanish, and they include research updates, educational content, guest speakers, and social time at each gathering. Pre-registrations will still be required, and as an extra layer…
Find out more »Glut1 Deficiency Foundation’s Virtual Community Gatherings: Child Glut1 Pals
Fall Glut1 Gatherings on Zoom: Child Glut1 Pals October 22, 2022 Our Zoom program provides opportunities for members of our community to meet up with others no matter where we live! These gatherings will provide us opportunities to meet, share, learn, and support one another. Our quarterly meetings for parents are offered in both English and Spanish, and they include research updates, educational content, guest speakers, and social time at each gathering. Pre-registrations will still be required, and as an…
Find out more »February 2023
Glut1 Deficiency Foundation’s Virtual Community Gatherings: Parents and Caregivers
Monthly Gatherings: Parent and Caregiver Group February 18, 2023 Led by: Glenna Steele and Rob Rapaport Topics: Social time and support - come with questions, topics to discuss, or stories to share! Special Guest: You! To register, click here.
Find out more »March 2023
Glut1 Deficiency Foundation’s Virtual Community Gatherings: Parents and Caregivers
Monthly Gatherings: Parent and Caregiver Group March 18, 2023 Led by: Glenna Steele and Rob Rapaport Topics: Social time and support - come with questions, topics to discuss, or stories to share! Special Guest: You! To register, click here.
Find out more »April 2023
Glu1 Deficiency Foundation’s Research Roundtable
Research Roundtable: Understanding Speech and Language Challenges in Glut1 Deficiency April 25, 2023 Featuring Professor Dr. Jörg Klepper and Kristina Simonyan, MD, PhD, Dr. Med To register, click here.
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