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The APS Type 1 Foundation’s International APS Type 1 Symposium
$190
The 3rd International APS Type 1 Symposium National Harbor, Maryland in partnership with the Immune Deficiency Foundation's IDF National Conference. Are you a autoimmune polyendocrine syndrome (APS) type 1 patient? Well don’t miss this important patient event. At this conference, APS type 1 patients and their families will have the opportunity to learn the latest […]
Find out more »The Spastic Paraplegia Foundation’s 2019 Spastic Paraplegia Annual Conference
$250
The 2019 Spastic Paraplegia Annual Conference Patients, their families, medical professionals, and caregivers are invited to attend this conference. Participants will have the opportunity to network with one another, build community, and learn the latest research and treatment news for hereditary spastic paraparesis and primary lateral sclerosis. For registration information, click here.
Find out more »The National Organization for Rare Disorders’ Living Rare, Living Stronger NORD Patient & Family Forum
$125
The 2019 Living Rare, Living Stronger NORD Patient & Family Forum featuring the Rare Impact Awards 2019 This rare disease patient forum brings together health professionals, physicians, patients, and medical researchers to learn from the latest scientific findings and form community together. This event will also include the Rare Impact Awards, an event that is […]
Find out more »The Oley Foundation’s Oley Foundation and University of Illinois at Chicago Conference
The 2019 Oley Foundation and University of Illinois at Chicago Annual Conference The Essentials of Home Parenteral and Enteral Nutrition: What Consumers and Clinicians Need to Know Are you a rare disease patient that requires tube feeding or intravenous nutrition? Well this is a great event for you to attend. Learn the basics about conducting […]
Find out more »The Alpha-1 Foundation’s Alpha-1 National Conference
$180
The 28th Annual Alpha-1 National Conference Orlando, Florida Are you an alpha-1 antitrypsin deficiency patient? Well don’t miss this important patient event. At this conference, alpha-1 antitrypsin deficiency patients and their families will have the opportunity to learn the latest about clinical care and treatment options for alpha-1 antitrypsin deficiency as well as hear about […]
Find out more »PURA Syndrome Foundation’s Annual PURA Syndrome Conference
$100
4th Annual PURA Syndrome Conference The conference will be an opportunity for patient families and medical experts to meet and learn about the latest in PURA syndrome research. Additionally, families will be able to consult with health professionals, build communities, and exchange ideas. For registration information, click here.
Find out more »The National Organization for Rare Disorders 2019 Patient & Family Forum
The 2019 Living Rare, Living Stronger NORD Patient & Family Forum Featuring The 2019 Rare Impact Awards As published on NORD's website, the 2019 Living Rare, Living Stronger NORD Patient & Family Forum will be held on June 21-23 of this year! It will bring the rare community together with physicians, medical students, and allied […]
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