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Events for June 21, 2019 › Rare Disease

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The APS Type 1 Foundation’s International APS Type 1 Symposium

June 20, 2019 - June 23, 2019
Gaylord National Resort and Convention Center, 201 Waterfront Street
National Harbor, MD 20745 United States
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$190

The 3rd International APS Type 1 Symposium National Harbor, Maryland in partnership with the Immune Deficiency Foundation's IDF National Conference. Are you a autoimmune polyendocrine syndrome (APS) type 1 patient? Well don’t miss this important patient event. At this conference, APS type 1 patients and their families will have the opportunity to learn the latest […]

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The Spastic Paraplegia Foundation’s 2019 Spastic Paraplegia Annual Conference

June 21, 2019 - June 22, 2019
Hilton San Antonio Airport, 611 NW Loop 410
San Antonio, TX 78216 United States
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$250

The 2019 Spastic Paraplegia Annual Conference Patients, their families, medical professionals, and caregivers are invited to attend this conference. Participants will have the opportunity to network with one another, build community, and learn the latest research and treatment news for hereditary spastic paraparesis and primary lateral sclerosis. For registration information, click here.

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The National Organization for Rare Disorders’ Living Rare, Living Stronger NORD Patient & Family Forum

June 21, 2019 - June 23, 2019
Hilton Americas Houston, 1600 Lamar Street
Houston, TX 77010 United States
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$125

The 2019 Living Rare, Living Stronger NORD Patient & Family Forum featuring the Rare Impact Awards 2019 This rare disease patient forum brings together health professionals, physicians, patients, and medical researchers to learn from the latest scientific findings and form community together. This event will also include the Rare Impact Awards, an event that is […]

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The Oley Foundation’s Oley Foundation and University of Illinois at Chicago Conference

June 21, 2019 - June 24, 2019
Lincolnshire Marriott Resort, Ten Marriott Drive
Lincolnshire, IL 60069 United States
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The 2019 Oley Foundation and University of Illinois at Chicago Annual Conference The Essentials of Home Parenteral and Enteral Nutrition: What Consumers and Clinicians Need to Know Are you a rare disease patient that requires tube feeding or intravenous nutrition? Well this is a great event for you to attend. Learn the basics about conducting […]

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The Alpha-1 Foundation’s Alpha-1 National Conference

June 21, 2019 - June 23, 2019
Omni Orland Resort at ChampionsGate, 1500 Masters Boulevard
ChampionsGate, FL 33896 United States
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$180

The 28th Annual Alpha-1 National Conference Orlando, Florida Are you an alpha-1 antitrypsin deficiency patient? Well don’t miss this important patient event. At this conference, alpha-1 antitrypsin deficiency patients and their families will have the opportunity to learn the latest about clinical care and treatment options for alpha-1 antitrypsin deficiency as well as hear about […]

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