We’ve recently added some new features to the Patient Worthy website to better suit our users’ needs! Our FAQ page is here to answer any questions you may have.

How do I contribute?

Please contact us using the form located here. When we receive your form submission, we can work together to determine the best way to present your story or content through our website and other platforms.

What diseases do we accept for submissions?

While we focus on rare diseases, we also serve underdiagnosed and neglected diseases and conditions. Your experiences may be something many rare patients can relate to, even if it is not officially “rare”. Don’t be deterred if your condition isn’t on our list, we’re always adding more! E-mail [email protected] to request an addition to our disease state list. Let us know if you would like your personal experience to be our first story under the new category. We accept articles not only from patients, but from anyone in the rare community be they care partners, family members, advocates, researchers, healthcare specialists and more.

What sort of material/structure would fit your platform?

We publish almost anything you’d like to write about. We want to publish the realities of rare disease, without censorship. Your article could be inspirational, but it doesn’t have to stay positive. It can be humorous, informative, or involve raw descriptions about the struggles of chronic illness or other people’s reactions to it. We will even feature forms of art like poetry, that help you to express your rare experiences.

How can I be featured on the contributors’ page?

Please contact us here if you want to be considered for the regular contributor page.

What should I include in my author bio?

Your author bio should speak to who you are, in approximately 200-250 words. While that may be tough, think of it like answering the question “Who are you?” if someone were to ask you in an elevator. What are the parts of you that make you, you?