Happy Friday! A tropical storm system will be traveling up through the mid-Atlantic this weekend, bringing wind and rain. Hunker down! This week, we have
Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on
Want to learn about scientific topics without needing a PhD? Check out the Science Simplified blog from TESS Research Foundation! Dr. Tanya Brown, PhD, works
Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we
For many people with Chagas disease, treatment may not be necessary; they stay asymptomatic and don’t experience many, if any, health effects. Some may experience
Together, Chris Lucas and Preston Brust make up LOCASH (also written as LoCash), an American country music duo. While the pair puts out some absolutely
In the United States, Orphan Drug designation is granted to drugs or biologics intended to treat, prevent, or diagnose rare conditions. A “rare” condition is
As discussed in Part I of this article, a recent HDBUZZ publication featured a news item stating that due to several severe adverse events occurring
September is Dystonia Awareness Month so I want to share a little about it and how it impacts those of us who live with it.
Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on
Written by Christina Fleagle There are millions of people around the world living with a rare disease, and for many, you may not know it
Often when a cure for a specific rare disease has yet to be developed, patients have enrolled in clinical trials with positive results. However, FDA-approved
For five years, 20-year-old Christopher Backlund lived with his grandfather, with whom he had a strong and meaningful bond. Unfortunately, Christopher’s grandfather, Mitchell, passed away
Happy Thursday! This week, we have details on the beginnings of a new trial testing CRISPR gene editing for Duchenne muscular dystrophy, how parents can
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