Positive Phase 2 Clinical Trial Results for PML!
What is PML? PML stands for progressive multifocal leukoencephalopathy. It’s a brain infection caused by the JC virus. The JC virus itself isn’t all that rare. In fact, its pretty…
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A Biomarker, an App, and Real-World Data: How Biogen is Trying to Improve Treatment for Patients With Multiple Sclerosis
As part of their work to support the treatment of patients with multiple sclerosis, Biogen has been investigating a potential new biomarker for the disease called serum neurofilament light (sNfL),…
Social Medwork Takes Prescriptions Online
Getting access to medication can be a difficult and demanding process for patients. There are often a number of hoops to jump through, papers to sign, tests to go through…
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This Multiple Sclerosis Patient’s Life Was Changed in a Big Way After a Clinical Trial
According to a story from Disability Today, Gary Campbell was just 30 years old, but his severe multiple sclerosis made him feel like someone who was three times older. His…
Canada Investigating Unproven Stem Cell Treatments
According to a report by CTV News, a number of clinics across Canada are offering an unproven treatment. These treatments focus on expensive and unverified stem cell therapies. The treatments…
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Using Telehealth as a Platform For Speech Therapy
According to a story from Scoop Independent News, speech therapists from the Waikato District in New Zealand have been using telehealth technology to great effect in order to deliver speech…
IV Therapy: Trendy Treatment Under Scrutinty
A Texas company, which opened in 2015, promised a new treatment for a number of conditions. Simply coming in and subscribing to a routine of IV treatments could treat cancer,…
Painting Primed to Help Multiple Sclerosis Patients
Human beings have long been fascinated with art. What stories does it tell, and what can we learn about ourselves from the things we create? Now, some doctors are investigating…
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This Immunotherapy Could be a Useful Treatment for Amyotrophic Lateral Sclerosis
According to a story from the Houston Chronicle, researchers are hoping that an immunotherapy treatment that was originally funded by an Ice Bucket Challenge grant could be a viable option…
UVA Researchers Make Multiple Sclerosis Breakthrough
According to a UVAToday report, researchers at UVA uncovered a new piece of the multiple sclerosis puzzle. The secret lies with what are known as lymphatic vessels. Lymphatic vessels normally…
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A Type of Brain Cell Researchers Named ‘ieAstrocytes’ have Been Implicated in Brain Inflammation
A recently published study has highlighted the role of a sub-group of astrocytes (a type of brain cell) in brain inflammation, which can be a feature of multiple serious…
Is UK Healthcare Leaving MS Patients Behind?
According to a report by The Telegraph, multiple sclerosis patients are being refused an important drug. The drug, known as ocrelizumab will not be funded by The National Institute for…
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Researchers are Looking for People Diagnosed with Multiple Sclerosis to Take Part in a Phone App Study
Researchers are looking for participants to take part in a study investigating whether a mobile app could benefit patients with multiple sclerosis. For more information about this study and how…
Woman Records Her MS Seizure to Raise Awareness
According to a story by The Health Pundit, one woman showed a bold new way to spread awareness for multiple sclerosis. Kate Langwine-Cooke filmed her experience of a seizure. The…
Experiencing Physical and Emotional Displacement with Lyme Disease
Too often we try to interpret the experiences of others without actually communicating with the very individuals we’re trying to better understand. This leads to false impressions and frequently creates…
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Taking These Two Immunotherapies in Order Could Make MS Symptoms Worse, Report Suggests
According to a story from Multiple Sclerosis News Today, a recent case report suggests that switching from the immunotherapy drug Gilenya to another immunotherapy called Lemtrada could cause a severe…
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Researchers Have Discovered a New Sub-Category of Multiple Sclerosis
A research team, funded in part by grants from the NIH and the National Multiple Sclerosis Society, say that they have discovered a new subtype of multiple sclerosis. The…
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Disabled Medical Professionals are Pushing for Changes in the Field
According to a story from Nevada Public Radio, in the early 1980s, Lisa Iezzoni was a medical student at Harvard University. Around that time she received a diagnosis of multiple…
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So Why DOES Canada have Scarcer Access to Rare Disease Therapies?
According to a story from CheckOrphan, Durhane Wong-Rieger, the CEO of the Canadian Organization for Rare Disorders, says that the Canadian health system has been letting down the roughly three…
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This Bodybuilder is Learning to Live With Neuromyelitis Optica
According to a story from wday.com, Paisley Forsell was what you might call a bit of an adrenaline junkie. She likes to live a high energy, active lifestyle. She loves…
Watch: HelloFresh Ad Centers on Woman With Multiple Sclerosis
Patient Worthy exists because there's just not enough visibility for the nearly 30 million Americans who have been diagnosed with disorders that are rare or have limited treatment optionss. So…
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Multiple Sclerosis Can Often be Preceded by Earlier Symptoms, Study Says
According to a story from UBC, a recent study has revealed that multiple sclerosis patients may start experiencing abnormal symptoms up to five years before they begin to manifest the…
How Rapid Autopsy Could Change What We Know About Rare Disease
Understanding diseases and the mechanisms behind them is a crucial step towards developing treatment. Many times, however, it's difficult to accomplish this due to the rarity of a condition, or…
Will the Case of Billy Caldwell Set a New Precedent for Medical Cannabis in the UK?
According to a story from uk.news.yahoo.com, when Billy Caldwell, age 12, and his mother returned from traveling to Canada, the Home Office initially confiscated a substance that had been the…
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Researchers Discover More Information on the Genetic Basis of Neuromyelitis Optica
According to a story from Newswise, a team of scientists and researchers have recently completed research that managed to reveal the genetic nature of the unusual rare disease neuromyelitis optica.…
