A Rare Diagnosis: Families in Wales Face the Reality of DRPLA
- September 22, 2025
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A Rare Diagnosis: Families in Wales Face the Reality of DRPLA bit.ly/4mvsJtD Read now at PatientWothy.com
#PatientWorthy #drpla #dentatorubral-pallidoluysianatrophy
This week on Patient Worthy's site, we're putting a spotlight on NF1. We'll be sharing helpful information, explore potential treatment options, and provide an opportunity for patients and caregivers to share their own personal stories. If you're interested in learning more or joining the conversation this week, visit patientworthy.com for the latest information. If you have a story to share with NF1, click here: bit.ly/4dV7gru
#NF1 #neurofibromatosis #raredisease #shareyourstory #PatientWorthy
OPMD Association Non-Profit for Oculopharyngeal Muscular Dystrophy A wonderful line-up of speakers! This is tomorrow!
