Rare Community Profiles: “A Ballsy Sense of Tumor:” How Justin’s Testicular Cancer Diagnosis Led Him to Advocacy Around Men’s Health
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Rare Community Profiles: “A Ballsy Sense of Tumor:” How Justin’s Testicular Cancer Diagnosis Led Him to Advocacy Around Men’s Health

  Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families, advocates, scientists, and more.…

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The N-Lorem Foundation is Developing Treatments for Patients With Ultra-Rare Diseases
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The N-Lorem Foundation is Developing Treatments for Patients With Ultra-Rare Diseases

  A recent article in the Encinitas Advocate heralded the dedication of Stan Crooke, n-Lorem Foundation’s CEO and founder. The nonprofit Foundation’s team acts as middlemen, working with patients who…

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Researchers Discover “Testicular Cancer-Associated Paraneoplastic Encephalitis,” an Autoimmune Disease
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Researchers Discover “Testicular Cancer-Associated Paraneoplastic Encephalitis,” an Autoimmune Disease

According to a story from Cancer Health, a team of scientists affiliated with Mayo Clinic, UC San Francisco, and the Chan Zuckerburg Biohub have discovered a new rare, autoimmune disease…

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Let the Men in Your Life Know About Men’s Health and Rare Diseases for Father’s Day

June 10th through 16th is Men Health's/Rare Dads Week! We would like to devote some attention to the rare diseases that affect mostly men - because to quote Congressman Bill…

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Birth of Healthy Baby Monkey Indicates Promise of New Technique To Preserve Fertility of Childhood Cancer Patients

As the field of medicine has continually advanced, more and more children (now approximately 80%) are surviving cancer diagnoses. It's amazing. It also means that researchers are able to focus…

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Gentlemen, This One’s For You: Men’s Health Awareness Week is Now!
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Gentlemen, This One’s For You: Men’s Health Awareness Week is Now!

The second week of June is Men's Health Awareness week, leading right into father's day! For all our male readers - and for the women who have special men in…

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New Bathroom Changes The Game For Family Fighting Rare Disease and Cancer
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New Bathroom Changes The Game For Family Fighting Rare Disease and Cancer

Margarita Matias could not believe her eyes when she walked into the newly renovated bathroom. Her old bathroom was far from ideal, and often leaked. The new arrangement is optimized…

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