
Choosing to Be Me: Redefining My Life with Rheumatic Heart Disease
Patient Worthy Contributor - March 30, 2026LISTEN TO OUR PODCAST
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For some people living with rare diseases, weight loss and weakness aren’t simply about nutrition or appetite. Underlying illnesses can change how the body uses energy and muscle, leading to significant physical decline over time. Raising awareness about these complications helps highlight the serious ways certain diseases affect the body and why comprehensive care and research are so important. #RareWordOfTheWeek #RareDisease #RareDiseaseAwareness #PatientWorthy ... See MoreSee Less

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For some people living with rare diseases, weight loss and weakness aren’t simply about nutrition or appetite. Underlying illnesses can change how the body uses energy and muscle, leading to significant physical decline over time. Raising awareness about these complications helps highlight the serious ways certain diseases affect the body and why comprehensive care and research are so important. #RareWordOfTheWeek #RareDisease #RareDiseaseAwareness #PatientWorthy ... See MoreSee Less

Throughout the week, Patient Worthy is highlighting narcolepsy with educational content aimed at raising awareness and fostering greater understanding in our community.
We’ll be sharing information on our socials and patientworthy.com to educate, empower, and support those affected by this condition.
Have a story you’d like to share? Your voice matters! Join the conversation by clicking the link in our bio.
#Narcolepsy #NarcolepsyAwareness #PatientWorthy #ShareYourStory
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