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Today, on National Doctors Day, we thank and appreciate all the physicians caring for those with rare and chronic conditions!
Alagille Syndrome Alliance #eye👁️ #ScienceSunday: Understanding Eye Involvement in Alagille Syndrome (ALGS)
Dr. Ken Nischal recently sat down with Kerri from Rare Disease 360 to discuss an exciting collaborative initiative through the ALGSA Scientific Research Network (ASRN) Eye Research Focus Group. The goal: assess the feasibility of ophthalmologists joining a future observational study to better characterize eye phenotypes in individuals with Alagille Syndrome and understand how common they are.
In the interview, Dr. Nischal also shares an overview of potential eye involvement in ALGS and explains why building a clearer picture of the natural history of ocular impacts is so important to understanding the full spectrum of the condition.
🎥 Watch the interview here:
zurl.co/3lSgB
👩⚕️ Are you an ophthalmologist who sees ALGS patients and interested in future participation? Complete the feasibility questionnaire here:
zurl.co/uMsAc
💛 Are you a patient or caregiver interested in a future eye observational study, or want your ophthalmologist to get involved?
Email [email protected]
#AlagilleSyndrome #ALGS #ALGSA #RareDisease #RareDiseaseResearch #EyeHealth #Ophthalmology
International Rett Syndrome Foundation Wee Ones BowsWe are proud to partner with Wee Ones Bows, a leading children’s accessory brand, to support Rett syndrome research, family programs, and advocacy!
Shop now to receive 10% off your purchase, PLUS 10% of the sale proceeds will be donated back to IRSF to help advance critical Rett syndrome initiatives. Best of all, this exclusive IRSF discount is stackable with any current Wee Ones website sales or promotions, making it easy to give back while saving more. (IRSF discount is reflected in the shopping cart at checkout.)
Shop. Save. Support the Rett community!
👉 weeones.com/IRSF
