Patient Worthy

11 hours ago

💡 May 6th is Moyamoya Disease Awareness Day. Moyamoya is a rare blood vessel condition in which the carotid artery in the skull becomes blocked or narrowed. The carotid artery is a major artery that brings blood to the brain. When it's blocked, blood flow to the brain is reduced.

The condition may cause strokes or mini strokes. It also can cause bleeding in the brain. Moyamoya disease can affect how well the brain functions and can cause cognitive and developmental delays or disability.

Moyamoya is found all over the world, but it's more common in East Asian countries, especially Korea, Japan and China. This may be due to certain genetic factors in those populations.

At one time it was estimated that moyamoya disease occurred in only 1 in 2 million people. As awareness of the disease has grown across the medical community, more patients are getting diagnosed properly. Despite the increase in moyamoya awareness and education initiatives over the last two decades, moyamoya disease remains rare, continues to be challenging to get a diagnosis and treatment, and frustratingly, remains incurable. (Source: Mayo Clinic)

To learn more about Moyamoya Disease, visit our website: bit.ly/3QJblYu

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Patient Worthy

11 hours ago

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Patient Worthy

13 hours ago

@CureDuchene"It's time." After two decades of funding the science, advocating for her son, and refusing to give up, Debra Miller's words say it all. STAT News is telling the story of CureDuchenne, Hawken, and the next generation of exon-skipping therapies that are changing what's possible for Duchenne families.

@followers You can NOW read the unlocked article here:
www.parsintl.com/eprints/137440.pdf ... See MoreSee Less