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13 hours ago

Duchenne muscular dystrophy (DMD) is more than a diagnosis—it’s a genetic condition that gradually weakens the muscles over time. It begins with a mutation that prevents the body from producing dystrophin, a protein muscles need to stay strong and protected. Without it, everyday movements slowly become more difficult.
Early signs often show up in childhood and may include frequent falls, trouble running or climbing stairs, difficulty getting up from the floor, and enlarged calf muscles. As the condition progresses, muscle weakness spreads and can eventually affect the heart and lungs.
Raising awareness means recognizing the signs, understanding the cause, and supporting those impacted. Knowledge helps drive earlier diagnosis, better care, and stronger advocacy for treatments and research. #DMDAwareness #MuscularDystrophy #PatientWorthy
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Duchenne muscular dystrophy (DMD) is more than a diagnosis—it’s a genetic condition that gradually weakens the muscles over time. It begins with a mutation that prevents the body from producing dystrophin, a protein muscles need to stay strong and protected. Without it, everyday movements slowly become more difficult.
Early signs often show up in childhood and may include frequent falls, trouble running or climbing stairs, difficulty getting up from the floor, and enlarged calf muscles. As the condition progresses, muscle weakness spreads and can eventually affect the heart and lungs.
Raising awareness means recognizing the signs, understanding the cause, and supporting those impacted. Knowledge helps drive earlier diagnosis, better care, and stronger advocacy for treatments and research. #DMDAwareness #MuscularDystrophy #PatientWorthyImage attachment
16 hours ago

Today is Global CRSwNP Awareness Day 2026. Chronic Rhinosinusitis with Nasal Polyps (CRSwNP) is a chronic inflammatory condition where soft growths develop in the nasal passages and sinuses, often causing congestion, reduced sense of smell, facial pressure, and difficulty breathing. Today, we raise awareness and support better understanding and care for those affected! #PatientWorthy #CRSwNP #crswnpawarenessday #NasalPolyps ... See MoreSee Less

Today is Global CRSwNP Awareness Day 2026. Chronic Rhinosinusitis with Nasal Polyps (CRSwNP) is a chronic inflammatory condition where soft growths develop in the nasal passages and sinuses, often causing congestion, reduced sense of smell, facial pressure, and difficulty breathing. Today, we raise awareness and support better understanding and care for those affected! #PatientWorthy #CRSwNP #CRSwNPAwarenessDay #NasalPolyps
19 hours ago

April 23 is Fibrodysplasia Ossificans Progressiva (FOP) Awareness Day.
FOP is an ultra‑rare genetic condition where bone forms in places it shouldn't, gradually limiting movement. Awareness helps prevent misdiagnosis, supports research, and reminds those living with FOP that they are not alone. 💙
#FOPAwarenessDay #cureFOP #rarediseaseawareness #UltraRare #PatientWorthy
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April 23 is Fibrodysplasia Ossificans Progressiva (FOP) Awareness Day.
FOP is an ultra‑rare genetic condition where bone forms in places it shouldnt, gradually limiting movement. Awareness helps prevent misdiagnosis, supports research, and reminds those living with FOP that they are not alone. 💙
#FOPAwarenessDay #CureFOP #RareDiseaseAwareness #UltraRare #PatientWorthy
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