Patient Worthy

8 hours ago

This week, Patient Worthy is focusing on Parkinson’s Disease, sharing educational content to bring greater awareness and understanding to our community.
We’ll be featuring resources and insights on our social channels and patientworthy.com to help inform, empower, and support those living with Parkinson’s.
Interested in sharing your Parkinson’s story? Click the link below to connect with us.
bit.ly/4dV7gru
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Patient Worthy

10 hours ago

Many rare diseases affect the nervous system and muscles, leading to symptoms like increased muscle tension or stiffness that can impact movement, comfort, and daily activities. For people in the rare disease community, symptoms like this are part of the complex ways these conditions affect the body. Raising awareness helps improve understanding of neurological symptoms and why recognizing them can be important for diagnosis and care.

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Patient Worthy

13 hours ago

#geneticcounseling #GeneticTesting @TessResearchFoundationIt's #NationalDNADay! 🎉

Receiving an SLC13A5 Epilepsy diagnosis involves genetic testing, which looks at a person's DNA to find any changes that may affect health. 🧬

Our Founder & Executive Director, Kim Nye, recently joined genetic counselor, Dr. Lauren Beretich to walk through what’s in a genetic report and how this important information can help guide a family’s next steps. ✍️

📹 Watch the video here: bit.ly/4tcWnrj

#TESSResearch #SLC13A5Epilepsy #RareDisease #Epilepsy #EpilepsyAwareness ... See MoreSee Less