
My Journey, My Life, My Story, My Book – Carry’s Experiences with “Fish Odor Syndrome”
Austin Newman - March 18, 2026LISTEN TO OUR PODCAST
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During GRI Awareness Month, we recognize the individuals and families living with glutamate receptor ionotropic (GRIN)–related disorders. For many, the journey includes navigating a rare diagnosis, searching for answers, and learning to live with a condition that most people have never heard of.
Awareness helps bring visibility to this community, encourages understanding, and supports the continued push for research and better care. Most importantly, it reminds those affected that their stories matter and that they are not alone.
#griawarenessmonth #GRIDisorders #raredisease #RareDiseaseAwareness #PatientWorthy
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Have you or someone you love been impacted by HR+/HER2- Breast Cancer?
At Patient Worthy, we believe every journey matters. Your story can remind others they are not alone and help them feel supported during a difficult time. By sharing your experience, you can inspire hope in those walking a similar path.
Share your breast cancer journey with us through the link below. Your voice could be the one someone needs to hear today.
bit.ly/4dV7gru
#breastcancer #yourstorymatters #shareyourstory #PatientWorthy
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🌍 World Young Rheumatic Diseases Day – March 18
Children and young people get rheumatic diseases too, and they deserve to be seen, heard, and believed. 💙
On World Young Rheumatic Disease Day, we raise awareness of conditions like juvenile arthritis and lupus, and the importance of early diagnosis and access to specialist care.
Awareness changes lives.
Early treatment can mean less pain, fewer complications, and a better future.
Let’s spread the word so no child is overlooked.
#WORDDay #WorldYoungRheumaticDiseaseDay #PatientWorthy #InvisibleIllness #ChildrenGetArthritisToo
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