Vico Therapeutics Begins Twice‑Yearly Dosing of VO659 in Phase 1/2 Trial for Huntington’s Disease and Spinocerebellar Ataxias
- March 5, 2026
James’ Story: Navigating Life With Myelofibrosis
FDA Approves Revolutionary Oral Combination Therapy for Chronic Lymphocytic Leukemia, Offering Patients Freedom from Long-Term Treatment
First Patient Dosed in Phase 3 CLARITY Trial Evaluating Solriamfetol for MDD With Excessive Daytime Sleepiness
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Today, on Dissociative Identity Disorder Awareness Day, we take time to honor and support the 1–3% of people worldwide living with DID — a complex, trauma‑related mental health condition that is often misunderstood and misrepresented.
DID develops as a response to severe or chronic childhood trauma, and many individuals spend years navigating misdiagnosis or stigma before receiving proper care.
Let’s use this day to:
💜 Replace myths with understanding
💜 Challenge stigma fueled by media portrayals
💜 Amplify the voices of survivors
💜 Promote compassion, education, and trauma‑informed support
Awareness saves lives. Empathy changes them.
#DIDAwarenessDay #TraumaInformedCare #MentalHealthMatters #PatientWorthy
Vasculitis FoundationHundreds of thousands of people live with vasculitis, but limited research is done. 💜
On today’s National Rare Disease Day, we want to give thanks to 5000+ members of the VPPRN who are moving research forward!
You can help research keep pace! When you check in with the VPPRN, you are driving meaningful advancements in medicine. Every response helps doctors learn directly from your lived experience.
You can power the next discovery in 2 steps:
⭐ Log into www.vpprn.org/login
⭐ Complete your forms
Today we have better studies, better answers, because of you!
Patient Worthy is honored to share Angela's journey!
"My name is Angela Davis, and I have a very rare disease, literally one in a million, called Stiff Person Syndrome (SPS). SPS causes my neuromuscular system to seize and can lead to fractured bones, loss of vocal control, episodes of immobility, and difficulty breathing as muscles tighten around my ribcage. My specialists believe I have had SPS since birth, but it took 23 years of a diagnostic odyssey before I finally received an accurate diagnosis. Rare Disease Month and Rare Disease Day mean so much to me because they focus on the patient’s voice. Our lived experiences, our symptoms, and our stories often provide essential information for doctors, researchers, and other patients who are still searching for answers and relief. Today, I am a Stiff Person Syndrome patient advocate and a rare disease writer, and I am honored to support the rare disease community in any way I can. Awareness leads to understanding, and understanding leads to hope for earlier diagnoses, better treatments, and stronger support for all of us living with rare conditions."
#RareDisease #RareButNotAlone #WeCareAboutRare #ShareYourStripes #ShareYourStory #PatientWorthy
