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EveryLife Foundation for Rare DiseasesThe #RAREis Scholarship supports individuals with rare diseases in building their dreams. Beyond financial support, recipients are invited to participate in a mentorship program that connects them with peers who share similar experiences or areas of study.
Apply by April 28 at 2 PM ET at hubs.li/Q049_wpm0
WORLD ORPHAN DRUG CONFERENCEFrom June 9-11 in Boston, MA, the World Orphan Drug Congress USA will once again bring together pharmaceutical companies, government officials, patient advocates, and other crucial stakeholders who contribute to developing and improving access to life-saving therapies for rare disease patients. With over 280 speakers and 2,000 attendees, this event is an opportunity to develop innovative solutions to the challenges that orphan drug development poses.
Our Chief Mission Officer, Annie Kennedy, will speak on the first day of the event at 9:20 am during the keynote titled, “Building a Patient-Centered Policy Framework for Rare Disease Drug Development.” The keynote will focus on how policymakers, regulators, and industry can collaborate to create strategies that incorporate patient insights into all stages of drug development.
You can join Annie and the EveryLife Foundation at this event for free with a guest pass. Click the following link to access the guest pass application form to secure a spot: secure.terrapinn.com/V5/sponsor-guest/11031/a0AN200000inZjFMAU?utm_source=partners&utm_medium=eve...
You can learn more about this year’s World Orphan Drug Congress USA here: www.terrapinn.com/conference/world-orphan-drug-congress-usa/index.stm?utm_source=partners&utm_med...
