Gypsy Rose Blanchard spent a life suffering through neverending doctors appointments, surgeries, living in a wheelchair, and being fed through a feeding tub. As it
Cambridge Rare Disease Network
Cambridge Rare Disease Network (CRDN) is a charity building a vibrant, engaged and empowered network of people affected by rare disease, their advocates and the professionals and companies who work to improve their lives. It’s 2019 and rare diseases are still not being consistently diagnosed, treated and supported effectively. CRDN is using its unique position in Cambridge, a cluster of knowledge and innovation, to help those affected, here or wherever they are.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Connect With the Cambridge Rare Disease Network
Patient Worthy Posts
According to a story from the TGen Blog, a simple typing mistake lead to a diagnosis for a boy with an incredibly rare genetic disorder.
Happy Thursday! It’s cold and flu season around our parts, so we hope everyone reading this has dodged the fall viruses! This week, we’re sharing
According to a story from news-medical.net, the National Institutes of Health (NIH) has doled a total of $31 million on grants this year to 20
According to a story from med.miami.edu, an international research consortium known as Clinical Research in ALS and Related Disorders for Therapeutic Development (CReATe) has just been