Are you Walking, Eh? Canadians Lace Up for a Good Cause
On June 7, 2015, thousands of people took to the streets across Canada in the annual Walk to End Arthritis. A leading cause of disability, arthritis costs
- Rare Disease News
Center for Chronic Illness
Center for Chronic Illness
The Center for Chronic Illness (CCI) is a 501(c)3 nonprofit based in Seattle, Washington. CCI promotes well-being and decreases isolation for those impacted by ongoing health challenges through their ongoing, professionally-facilitated support groups and health education programs. Their programs are designed to bring people together with different diagnoses in hopes of building connection and community. They offer programs both in the greater Seattle area and via the web at https://www.supportgroupscentral.com/CCI. All Center for Chronic Illness programs are free of cost to patients.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
- Chronic Illness
Patient Worthy Posts on Chronic Illness
Grad School, Work, Service, AND Chronic Illnesses? You Bet
Meet Amanda! Amanda’s vlog (video blog), ShAMANDAgans, helps her keep in touch with friends and family and share her story. She’s an ambitious and
Living with 2 Rare Diseases, this Blogger is a Champion
Meet Yoni Masel- RareDisease Patient, Advocate, Activist & Blogger His goal: To raise awareness for rare diseases, and to help others by educating and sharing
Why do Pharma Companies Care About Rare Diseases?
Why Pharma cares more and more about Rare Diseases Congress. The FDA. Patient Advocates. And Venture Philanthropy. When it comes to rare diseases, medicines haven’t
A 7-Layered “How To” on Managing Your Life with CVID
Upon getting a diagnosis of a chronic illness, like CVID, or Common Variable Immune Deficiency, it’s easy to get overwhelmed. Bogged down by questions in
Why me? Why Mine? The Unanswerable Questions of Illness
Expert knowledge, however indispensable, is no substitute for a generous and comprehending outlook upon the human story with all its sadness and with all its
