Danny’s Dose

Danny’s Dose was founded by Darlene Shelton, the grandmother to a wonderful little boy with Hemophilia, Danny, who is the heart of Danny’s Dose. Danny’s Dose strives to prevent morbidity and mortality for the population of people with rare disease, chronic illness and special medical needs, who require specialized treatment and/or receiving their patient carried specialty meds in emergencies. They do this through:

  • Informing Americans of the oversight in our emergency medical protocols;
  • Protecting the individuals who can be harmed or loose a life due to improper or delayed treatment;
  • Protecting those Paramedics and Doctors who are forced to make a decision of following a  “rule” or “regulation” over saving joints, muscles, organs, and lives;
  • Being the driving force in building teams in every state to stand and be heard;
  • Seeing these PROTOCOLS amended one state at a time; preferably not by legislation unless absolutely necessary
  • Seeing these PROTOCOLS amended also on the national level;
  • Providing education to families in Emergency Planning and provide Emergency Alert products for their protection
  • Raising awareness to the Medical Association so they can help educate patients and families

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

Resources & Support

Connect With Danny’s Dose

Patient Worthy Posts on Hemophilia, Hemophilia A, Hemophilia B

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

© Copyright Patient Worthy

Close Menu