Dysautonomia Advocacy Foundation
Dysautonomia Advocacy Foundation is 501(C)(3) nonprofit based in Charleston, S.C, founded in 2014. Team DAF’s mission is to reduce the statistical average of 5 years to diagnose a patient with dysautonomias down to an office visit by implementing integrative research. This research will result in awareness and targeted treatments for those diagnosed with dysautonomias.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Dysautonomia
The Impact of Jewish Diseases
Gina, a 14-year-old Jewish girl, had familial dysautonomia when she passed away. She was described as a having a ‘positive and upbeat attitude’ and enjoyed
-300x300.jpg)
Postural Orthostatic Tachycardia Syndrome (POTS): An Underdiagnosed Condition That Doctors Said Was All in Her Head
About one to three million people in the United States are living with postural orthostatic tachycardia syndrome (POTS). The disease affects one in one hundred
After Visiting Nearly 100 Doctors, This Man Still Doesn’t Have a Diagnosis for His Rare Disease
According to a story from the Washington Post, Bob Schwartz is a walking, talking medical mystery. He lives with a strange and diverse array of
Study Findings May Make it Easier to Diagnose POTS
According to a story from UToledo News, a recent study conducted as the school’s College of Medicine and Life Sciences may make it easier for
-300x300.jpg)
This Young Man Accurately Diagnosed His Own Disorder But Doctors Did Not Believe His Diagnosis
Doug Lindsay ran track in high school. According to an article published by CNN Health, Doug had big plans as a senior at Rockhurst University
Math Caujungco Receives Award for Mucolipidosis Type IV Discovery
Mucolipidosis Type IV Mucolipidosis Type IV (ML-IV) is a rare disease which causes a reduced mental capacity and blindness. ML-IV is caused by a missing or
