Dysautonomia Advocacy Foundation
Dysautonomia Advocacy Foundation is 501(C)(3) nonprofit based in Charleston, S.C, founded in 2014. Team DAF’s mission is to reduce the statistical average of 5 years to diagnose a patient with dysautonomias down to an office visit by implementing integrative research. This research will result in awareness and targeted treatments for those diagnosed with dysautonomias.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Dysautonomia
Holding on to Faith and Hope: Leah’s Story, Part 2
This is part 2 of Leah’s story, click here to read part 1 Leah listened as the doctor explained that her body couldn’t continue to
Holding on to Faith and Hope: Leah’s Story, Part 1
As Leah approached her late twenties she was, in her own words, a “tank.” She kept up with her ex-Marine husband’s work outs and ran
5 Questions I Ask Myself at Thanksgiving with Rare Disease
Thanksgiving is a time of gratitude, family and maybe a little gluttony. It was always my favorite time of the year in high school and
Morgan Share her POTS Story: Part Two
This is part two of Morgan’s story. Read the first half here. I was taken off of work and school for three months to monitor my
Morgan Share her POTS Story: Part One
This is part one of Morgan’s journey with POTS. Check out the second half of her story here. Like most stories, mine begins with someone
Stephanie’s Journey
Hello. My name is Stephanie Lewis. I am 48 years old and have been ill over half my life. I have been diagnosed with Asthma,
