Dysautonomia Advocacy Foundation
Dysautonomia Advocacy Foundation is 501(C)(3) nonprofit based in Charleston, S.C, founded in 2014. Team DAF’s mission is to reduce the statistical average of 5 years to diagnose a patient with dysautonomias down to an office visit by implementing integrative research. This research will result in awareness and targeted treatments for those diagnosed with dysautonomias.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Dysautonomia
Math Caujungco Receives Award for Mucolipidosis Type IV Discovery
Mucolipidosis Type IV Mucolipidosis Type IV (ML-IV) is a rare disease which causes a reduced mental capacity and blindness. ML-IV is caused by a missing or
6 Times Scrubs Mentions Rare and Chronic Illnesses
As it turns out, I am obsessed with Scrubs. The TV show, not the song. When I was at my sickest to date, those TV
5 Things My Boyfriend Has Had to Get Used to Since Dating a Spoonie
As much as there is so much to talk about regarding dating while battling a chronic illness, I want to focus for a moment on
5 Tips to Make it Through the Holiday Season with Chronic Illness
I love the holidays. The lights, decorations, family time… even the smells are better! People generally seem to be jollier, even though there are a
Changing Your Goals and Dreams: A Patient Story
Recording artist, published author, songwriter, musician, painter (acrylics)– who would have thought the fun would begin after 40? I think I was born laughing. Humor
5 Questions I Ask Myself at Thanksgiving with Rare Disease
Thanksgiving is a time of gratitude, family and maybe a little gluttony. It was always my favorite time of the year in high school and
