Dysautonomia Advocacy Foundation
Dysautonomia Advocacy Foundation is 501(C)(3) nonprofit based in Charleston, S.C, founded in 2014. Team DAF’s mission is to reduce the statistical average of 5 years to diagnose a patient with dysautonomias down to an office visit by implementing integrative research. This research will result in awareness and targeted treatments for those diagnosed with dysautonomias.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Dysautonomia
On A Scale From Kim K to 10, How Well Do You Know Your Rare Disease?
Kim Kardashian: one of the most famous women in the world. Why, you ask? I honestly don’t know. But due to that fact that so many
This Honest Mom Doesn’t Want You to Be Ashamed of Your Rare Disease
Kathryn is a wife and mother of two amazing kids. She lives with undifferentiated idiopathic periodic fever syndrome, cold induced urticaria, and POTS. Patient Worthy
What’s in a Name? These Rare Disease Patients are Finding Out
Dysautonomia (dis-aw-tuh-noh-mee-uh or dis-auto-noh-meeuh) is surprisingly common. Around the world, an estimated 70 million people are impacted by autonomic nervous system disorders. And while some forms
To My Younger Self: Love & Embrace Your Rare Journey
Dear strong one, I look at you and I see determination. Things are so hard for you right now, rushing from hospital to hospital. I
Are You As “Crazy” As This Girl with POTS?
Meet Emily Deaton, 21, of Mechanicsville, Virginia. Like many people with invisible illnesses, Emily’s journey to an accurate diagnosis was more of a nightmare than a dream.
Si su hijo tiene una enfermedad rara, lo que necesita saber sobre el abuso infantil médica
Cuando eres es un padre preocupado con un hijo enfermo y los médicos no pueden decirle lo que está mal, o darle respuestas que no
