Dysautonomia Advocacy Foundation
Dysautonomia Advocacy Foundation is 501(C)(3) nonprofit based in Charleston, S.C, founded in 2014. Team DAF’s mission is to reduce the statistical average of 5 years to diagnose a patient with dysautonomias down to an office visit by implementing integrative research. This research will result in awareness and targeted treatments for those diagnosed with dysautonomias.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Dysautonomia
11 Things This Dysautonomia Super Mom Needs You To Know
Susan realized there might be more to her son’s quirks—like his inability to breast-feed, the continuous projectile vomiting, and his taking an oddly long time to drink
How to Make October Work for Dysautonomia Awareness
October is Dysautonomia Awareness Month! Before we get into advocacy, let’s touch on basic awareness… What is dysautonomia? Dysautonomia is the umbrella term that encompasses several
Editor’s Choice: What is Your Resolution This New Year?
Happy Almost-New-Year Patient Worthians! What is your new year resolution? As someone living with a chronic illness, mine is to get back to my cardiologist
Editor’s Choice Weekend Roundup: It’s mid-#NERVEmber!
We are mid-#NERVEmber and gearing up for the Thanksgiving season! As we continue covering chronic illnesses like CRPS/RDS that can greatly effect the nerves, we are also
After Visiting Nearly 100 Doctors, This Man Still Doesn’t Have a Diagnosis for His Rare Disease
According to a story from the Washington Post, Bob Schwartz is a walking, talking medical mystery. He lives with a strange and diverse array of
Editor’s Choice: What Happens When You Look in the Mirror and Don’t Recognize the Person Looking Back?
Happy American Independence Day Weekend Patient Worthy! What happens when you look into the mirror and the person staring back isn’t who you were expecting? One
