MdDS Foundation
The MdDS Foundation is an all-volunteer 501(c)(3) organization that seeks to promote awareness of, and to support bio-medical research into a cause, treatment, and a cure for MdDS. In addition, the Foundation assists medical professionals and patients suffering with MdDS through its website, which contains a list of related bio-medical research, and social media based support groups. Mal de Debarquement syndrome (MdDS) or disembarkment syndrome is a rare disorder of perceived motion that most often develops after a motion event including, but not limited to. ocean cruises, plane, train, automobile or other type of travel.
Although there are more cases reported in females, there are many men diagnosed with MdDS. MdDS symptoms include persistent and long-lasting sensations of motion (rocking, swaying, or bobbing); this perceived motion is associated with fatigue, imbalance, and impaired cognitive function. MdDS is frequently misdiagnosed or goes undiagnosed because many in the health care community are unaware. Unfortunately, effective MdDS treatments/therapies are lacking and the cause of MdDS remains unknown.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on MdDS
Learn About the Mysterious Mal de Debarquement Syndrome, Which Affects 10,000 Australians
According to a story from abc.net.au, an unusual and poorly known rare disease has been making its presence known in the country of Australia. This
4 Things I’ve Learned Since Getting MdDS
‘The future is here, it’s just not very evenly distributed’ William Gibson These days there’s much more literature about mal de debarquement syndrome (MdDS)
Rare Resilience During the Pandemic
Reprinted with permission from Findacure.org Today’s guest blog is written by Polly Moyer, Co-founder of the Action for Mal de Debarquement Syndrome UK facebook page and founder
MdDS Warrior Kimberly Warner is Creating a Film to Document Living with a Chronic Illness
Kimberly Warner Kimberly Warner was diagnosed with mal de débarquement syndrome (MdDS) after enduring a traumatic biking accident in May of 2014. The accident caused
Finally Finding Diagnosis: Mal De Debarquement
Julie Anding can recall the exact moment of onset of her mal de debarquement (MdDS) symptoms. It was December 27th of 2017. She was in
This Team Needs Your Help with Mal de Debarquement Syndrome Research!
A team of great researchers need your help! While the researchers who devised this survey (see below for the link) have had a great response
