Holidays with Dystonia
What does it mean to you to be living with a rare disease or chronic illness at this time of year? Over the years, since
Our Odyssey
Our Odyssey
The challenges facing young adults differ from those affecting older adults and are not always being heard or addressed. The burdens that young adults carry include coping with their disease, talking with family, friends, and romantic partners about their health condition, planning their future (family and career), and finding beneficial and responsible peer-support. The transition from childhood or adolescence to adulthood is often a time of uncertainty and the onset of complex emotions.
Founded in 2019, Our Odyssey is a 501(c)(3) nonprofit to address these unmet needs and provide year round in-person and virtual meetups to young adults between the ages of 18-35. Our Odyssey’s mission is to connect young adults impacted by a rare or chronic condition with social and emotional support in the hope of improving their quality of life. To learn more, please visit www.ourodyssey.org or contact us at [email protected].
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
- Chronic Illness
Patient Worthy Posts on Chronic Illness
Keeping Hope Alive When Living with a Chronic Health Condition
Living with a chronic health condition is sometimes reminiscent of the plight of Sisyphus, a king from Greek mythology. Sisyphus was king of Ephyra who
EP-104GI Performs Well in Eosinophilic Esophagitis (EoE) Trial
The Phase 1b/2a RESOLVE clinical study set out to identify how safe and effective EP-104GI is for people living with a chronic immune-mediated disease called
ICYMI: Make HStory Platform Offers Hidradenitis Suppurativa Education and Community Support
The importance of physician education and community support in healthcare cannot be understated. Well-educated physicians are better equipped to diagnose, treat, and manage a range
Antibiotic Exposure in Infancy May Increase the Risk of Developing Atopic Dermatitis
Also known as the most common form of eczema, atopic dermatitis is a chronic pruritic skin condition that causes skin to become excessively itchy, dry,
A Quick Mindfulness Tool to Find Peace from Stress and Pain
The other day I was speaking with a coaching client who suffers with a chronic health condition called dystonia, which is accompanied by chronic pain.
