You Do Not Need to Be Healed to Be Held: Love and Chronic Illness
Have you ever looked in the mirror and wondered, “Who am I now? Why did this diagnosis happen to me? When will this be over?
Our Odyssey
Our Odyssey
The challenges facing young adults differ from those affecting older adults and are not always being heard or addressed. The burdens that young adults carry include coping with their disease, talking with family, friends, and romantic partners about their health condition, planning their future (family and career), and finding beneficial and responsible peer-support. The transition from childhood or adolescence to adulthood is often a time of uncertainty and the onset of complex emotions.
Founded in 2019, Our Odyssey is a 501(c)(3) nonprofit to address these unmet needs and provide year round in-person and virtual meetups to young adults between the ages of 18-35. Our Odyssey’s mission is to connect young adults impacted by a rare or chronic condition with social and emotional support in the hope of improving their quality of life. To learn more, please visit www.ourodyssey.org or contact us at [email protected].
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
- Chronic Illness
Patient Worthy Posts on Chronic Illness
When Other People Doubt Your Body Long Enough, You Start Doing It for Them
For a long time, I knew something was wrong. And then, when whatever had been building inside my body finally came to the surface, it
How Creative Activities Help You Manage Stress and Feel Better
Editor’s Note: Patient Worthy is honored to present this article, originally written by Camille Johnson. People living with chronic illness or long-term treatment plans often
ICYMI: Make HStory Platform Offers Hidradenitis Suppurativa Education and Community Support
Editor’s Note: This article was originally published by Patient Worthy on 6/7/24, and is being republished due to our ongoing efforts to raise awareness of
“I Am More Than the Person in the Bed” – Kristian’s Message to the World
Most people see the bed first. That’s what defines me to them. The bed in the living room, the fact that I’m always in it.
How to Build a Lasting Legacy While Living with Chronic Illness
Patients living with chronic or rare diseases and the caregivers coordinating appointments, medications, and daily life often carry a quiet question alongside the medical work:
