
ICYMI: Make HStory Platform Offers Hidradenitis Suppurativa Education and Community Support
Editor’s Note: This article was originally published by Patient Worthy on 6/7/24, and is being republished due to our ongoing efforts to raise awareness of
The challenges facing young adults differ from those affecting older adults and are not always being heard or addressed. The burdens that young adults carry include coping with their disease, talking with family, friends, and romantic partners about their health condition, planning their future (family and career), and finding beneficial and responsible peer-support. The transition from childhood or adolescence to adulthood is often a time of uncertainty and the onset of complex emotions.
Founded in 2019, Our Odyssey is a 501(c)(3) nonprofit to address these unmet needs and provide year round in-person and virtual meetups to young adults between the ages of 18-35. Our Odyssey’s mission is to connect young adults impacted by a rare or chronic condition with social and emotional support in the hope of improving their quality of life. To learn more, please visit www.ourodyssey.org or contact us at [email protected].
Here is a list of conditions this partner raises awareness and advocacy for:

Editor’s Note: This article was originally published by Patient Worthy on 6/7/24, and is being republished due to our ongoing efforts to raise awareness of

Most people see the bed first. That’s what defines me to them. The bed in the living room, the fact that I’m always in it.

Patients living with chronic or rare diseases and the caregivers coordinating appointments, medications, and daily life often carry a quiet question alongside the medical work:

Editor’s Note: The views, thoughts, and opinions expressed in this article belong solely to the author and do not necessarily reflect the position of Patient

In 2017, Jamie Shultz was feeling on top of the world. She was 25 years old, engaged to the man of her dreams, had just

My name is Sarah. I am a solo mother to a beautiful five-year-old named Ensley! I’m not quite sure where to begin, but my world
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