Red Fred Project
The Red Fred Project finds children living in extraordinary circumstances (rare diseases, critical illnesses, life-limiting situations) and asks them the question: If you could write a book for the entire world to read, what would it be about? The stories they share are filled with humor, compassion and wisdom. The books they create together become a vehicle for these stories. They become a lasting voice, a tangible achievement for each child. As part of the proceeds from each book sold go to the family, or to a related cause chosen by the child, the books are also a way to help with financial difficulties.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Rare Disease
Editor’s Choice: When MG Attacks, Learn How to Fight
Happy Friday Patient Worthians! What happens when big pharma combines forces? Also, what are you doing in March? We have a conference for you! What are
A New Treatment For Ulcerative Colitis is Performing Well in Trials so Far
According to a story from Financial Content, the drug company Arena Pharmaceuticals recently announced that its data results from Phase II clinical trials has been
Robotic Exoskeletons May Be the Future of Therapy for Spinal Cord Injuries
According to a publication from The Inside Press, researchers at the Burke Neurological Institute in White Plains, New York recently conducted a clinical trial focused
3 maneras este vídeo te puede enseñar cómo abogar por el IP
He descubierto que a través de todo esto, mi hijo ha empezado a preguntar, ‘¿Cómo puedo ayudar? ¿Que puedo hacer?’ En cierto modo, esas son
$950,000 Raised to Fund NeuroMotor Pen, A Diagnostic Tool for Neurological Disorders
Every day, the world becomes increasingly technological. With this comes advances in many realms, from healthcare to education. Recently, says Parkinson’s News, medical technology company
Big Arms, A Chronic Disease… Ladies, What More Could You Want?
When you’re diagnosed with ankylosing spondyliltis (AS), the last thing you want to do is work out. Unless, of course, you’re Nate Lewnes. College senior,
