Red Fred Project

The Red Fred Project finds children living in extraordinary circumstances (rare diseases, critical illnesses, life-limiting situations) and asks them the question: If you could write a book for the entire world to read, what would it be about? The stories they share are filled with humor, compassion and wisdom. The books they create together become a vehicle for these stories. They become a lasting voice, a tangible achievement for each child. As part of the proceeds from each book sold go to the family, or to a related cause chosen by the child, the books are also a way to help with financial difficulties.

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

Resources & Support

Connect With the Red Fred Project

Patient Worthy Posts on Rare Disease

Free MDS Forum in TN!

Our partner organization, The MDS Foundation, Inc., is sponsoring another free myelodysplastic syndromes (MDS) Patient & Family/Caregiver Forum in Nashville, Tennessee. When: Thurs., September 19,

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