Rare & Undiagnosed Network (RUN)

Rare & Undiagnosed Network (RUN) is a group of advocates, patients, families, researchers, and healthcare providers whose mission states: “To empower rare and undiagnosed patients and their families with genomic information and community through advocacy, networking and support.” Find out more here.

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

Resources & Support

Connect With Rare and Undiagnosed Network

Patient Worthy Posts on Rare Disease

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

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