Rare & Undiagnosed Network (RUN)
Rare & Undiagnosed Network (RUN) is a group of advocates, patients, families, researchers, and healthcare providers whose mission states: “To empower rare and undiagnosed patients and their families with genomic information and community through advocacy, networking and support.” Find out more here.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Connect With Rare and Undiagnosed Network
Patient Worthy Posts on Rare Disease
Helping hands can do truly amazing things. Eurodis, the champions of Rare Disease Day, displays that in their 2015 Rare Disease Day theme video.
If you are considering pregnancy while managing ankylosing spondylitis, you may have a lot of questions, such as will you have the typical back pain that
There are some crazy diseases out in the world today, and hereditary angioedema, or HAE, is one of them. To see the symptoms in action, you