Rare & Undiagnosed Network (RUN)

Rare & Undiagnosed Network (RUN) is a group of advocates, patients, families, researchers, and healthcare providers whose mission states: “To empower rare and undiagnosed patients and their families with genomic information and community through advocacy, networking and support.” Find out more here.

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

Resources & Support

Connect With Rare and Undiagnosed Network

Patient Worthy Posts on Rare Disease