The Ehlers-Danlos Society

The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and related conditions. We support collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for the EDS and HSD population. Our goals are world-wide awareness and a better quality of life for all who suffer from these conditions. Research is at the center of what we do, so that one day we will have a cure. Our strength begins with hope.

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

Resources & Support

Connect With The Ehlers-Danlos Society

Patient Worthy Posts on Ehlers-Danlos Syndrome

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

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