The National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) is a nonprofit organization dedicated to serving the rare disease community through education, research, and patient advocacy. Through targeting patient organizations, medical personnel, and researchers trying to develop new diagnostics and treatments, NORD supports all parts of this community to ultimately improve the lives of patients and families affected by rare diseases. After all, alone we are rare, but together we are strong®. *Patient Worthy served as a 2016 Rare Disease Day Partner with NORD.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Rare Disease
Helping hands can do truly amazing things. Eurodis, the champions of Rare Disease Day, displays that in their 2015 Rare Disease Day theme video.
If you are considering pregnancy while managing ankylosing spondylitis, you may have a lot of questions, such as will you have the typical back pain that
There are some crazy diseases out in the world today, and hereditary angioedema, or HAE, is one of them. To see the symptoms in action, you