The Oley Foundation
The Oley Foundation is a national non-profit organization, founded in 1983. They aim to “enrich the lives of patients dependent on home intravenous nutrition (parenteral) and tube feeding (enteral) through education, advocacy, and networking.” They are a “resource for consumer’s families, clinicians and industry representatives, and other interested parties. The Foundation gives members the tools and confidence they need to manage their complex therapy and enables them to achieve normalcy in their lives.”
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Resources & Support
Patient Worthy Posts on Gastroschisis, Short bowel syndrome, Systemic Scleroderma, Gastroparesis
NIH Dishes Out Over $10 Million Towards Autoimmune Disease Therapies
According to a story from Scleroderma News, a team of researchers associated with Michigan Medicine has been awarded a grant to the tune of $10.2
Study Links IL-1 Cytokines to Increased Scarring in Systemic Scleroderma Patients
According to a publication from Scleroderma News, a study recently published in Clinical & Transitional Immunology suggests that certain cytokines (small proteins that play an
My Life Before and After Chronic Illness
I remember when I was younger and I felt so carefree. My life was easy-breezy, and full of great times, cool friends, laughter, and a
Finding Unbiased, Credible Information About Your Rare Disease Can Be Difficult, This Compilation of Resources May Help
When you or your child is first diagnosed with a rare disease it can be so difficult to know where to turn. You want to
The FDA Has Just Approved Teduglutide for Children with Short Bowel Syndrome
Short Bowel Syndrome Short bowel syndrome (SBS) is a rare condition which occurs when patients have a large portion of their intestine removed. The surgery
Two Sisters with Rare Conditions Founded The Fighting H.A.R.D. Foundation to Help Other Patients Feel Less Alone
The Origins of Fighting H.A.R.D. The Fighting H.A.R.D. Foundation was established in 2015 by two sisters who both live with multiple rare diagnoses. 16-year-old Allie
