The Oley Foundation
The Oley Foundation is a national non-profit organization, founded in 1983. They aim to “enrich the lives of patients dependent on home intravenous nutrition (parenteral) and tube feeding (enteral) through education, advocacy, and networking.” They are a “resource for consumer’s families, clinicians and industry representatives, and other interested parties. The Foundation gives members the tools and confidence they need to manage their complex therapy and enables them to achieve normalcy in their lives.”
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Resources & Support
Patient Worthy Posts on Gastroschisis, Short bowel syndrome, Systemic Scleroderma, Gastroparesis
Scleroderma: The Skin-Hardening Disease Affecting Two UK Sisters
An article from Comic Sands recently covered the story of a UK mother, Alison Beesley, who is now committed to taking care of her daughters Eliza and Eleanor full time. Eliza
Celebrate Gastroschisis Awareness Month with Avery’s Angels Foundation
July is Gastroschisis Awareness Month! Thanks to the great work of the Avery’s Angels Gastroschisis Foundation, there are a number of ways and resources to
University of Michigan Professor Creates Website to Provide Scleroderma Patients Resources and Support
Dinesh Khanna, a professor at the University of Michigan has worked heavily with the rare disease scleroderma. Michigan has its own Scleroderma Program, of which
Gastroparesis: Bringing Awareness to Invisible Illnesses
According to a story from metro.co.uk, many rare diseases and chronic conditions do not necessarily make a person look sick a lot of the time.
NIH Dishes Out Over $10 Million Towards Autoimmune Disease Therapies
According to a story from Scleroderma News, a team of researchers associated with Michigan Medicine has been awarded a grant to the tune of $10.2
Study Links IL-1 Cytokines to Increased Scarring in Systemic Scleroderma Patients
According to a publication from Scleroderma News, a study recently published in Clinical & Transitional Immunology suggests that certain cytokines (small proteins that play an
