The PURA Syndrome Foundation

The PURA Syndrome Foundation is a nonprofit, global foundation to serve, educate, and fund research for the PURA syndrome community. The Foundation brings together families, clinicians, and researchers to create a sense of community, helping make sure that no one feels alone by this rare disease.

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

Resources & Support

Connect With The Myelodysplastic Syndromes (MDS) Foundation

Patient Worthy Posts on PURA Syndrome