Editor’s Choice: Rare Disease News on the Founder of the Ice Bucket Challenge & Senator John McCain

It’s getting hot out there…

So you may as well read some news while staying cool inside if you’re in the US!

This week we have news on Senator John McCain’s glioblastoma diagnosis, the founder of the ALS Ice Bucket Challenge, and breaking news in Parkinson’s Disease.

So sit back and enjoy this week’s Editor’s Choice.


Breaking News in Parkinson’s Disease Research

If there is something Parkinson’s disease needs, as with any rare disease, it needs a cure.

Read more of the latest research here.


How a Son’s PURA Syndrome Brought His Family Closer

This story about a boy’s PURA Syndrome is a must-read.

Check it out here.


Ice Bucket Challenge Creator is Home from Latest Hospitalization from ALS

The story of the inception of the Ice Bucket Challenge is both heartbreaking and hopeful.

Read about the amazing Founder’s latest health update here.


Senator McCain Diagnosed with Rare Brain Cancer, Glioblastoma

After some small signs of brain issues, Senator McCain has been diagnosed with a rare disease.

Read more here.


Do you have a rare disease experience of your own? Share with us here.
Jessica Gladwell

Jessica Gladwell

Jessica Gladwell is one of PW's consultants and patient editors. She has lived with late-stage, chronic Lyme and POTS since circa 2002. She has also served as a caregiver to close family members with late-stage, chronic Lyme. Before diagnosis, she served as a business consultant for a large corporation and PM for a small digital branding agency. Now, she is proactive in the rare and neurological disease community, spreading awareness and advising on matters of health and lifestyle when living with a chronic illness.

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