Patient Stories

Rady’s Lupus Journey: Carried by Faith, Fueled by Hope

October 17, 2025

Sherry Crutchfield’s Journey with Glanzmann Thrombasthenia

October 16, 2025

Vincenzo’s Journey with Glanzmann Thrombasthenia

October 15, 2025

Jyll’s Journey with Glanzmann Thrombasthenia

October 14, 2025

My Diagnosis Didn’t Silence Me, It Lit a Fire

October 13, 2025

The Fight for Life: Sean Mulroney’s Battle Against the Odds

October 3, 2025

Emily’s Story with Glanzmann Thrombasthenia

October 2, 2025

Christena’s Caregiver Journey for Two Boys with DMD

October 1, 2025

Jhonnatan’s Fight Against Gastric Cancer

September 30, 2025

Brian’s Journey with Mantle Cell Lymphoma

September 29, 2025

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We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

PATIENT STORIES

The Weight of a Decision

Rady’s Lupus Journey: Carried by Faith, Fueled by Hope

Sherry Crutchfield’s Journey with Glanzmann Thrombasthenia

Vincenzo’s Journey with Glanzmann Thrombasthenia

My Diagnosis Didn’t Silence Me, It Lit a Fire

Living with Brugada Syndrome

The Fight for Life: Sean Mulroney’s Battle Against the Odds

Emily’s Story with Glanzmann Thrombasthenia

Christena’s Caregiver Journey for Two Boys with DMD

Jhonnatan’s Fight Against Gastric Cancer

Brian’s Journey with Mantle Cell Lymphoma

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