До 1983 года было мало средств для лечения редких заболеваний. На этом пути стояли различные препятствия, в том числе слабое представительство пациентов, мало стимулов и недостаток ресурсов. К счастью, в…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor — ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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