Author Emma Hannigan passed away March 3rd 2018. Hannigan led a life of strength and dignity, persevering through her cancer diagnosis. Her husband, Cian, left a touching tribute to his…
What if we could predict diseases before they happen? What if we could treat diseases like multiple sclerosis and pancreatic cancer before they fully developed. Microsoft is partnering with a…
If you have a rare disease, chances are, sometimes you feel all alone in your experience. When you look around, there are people all over the world fighting similar battles.…
Looking different as a kid (or adult) can have a serious impact on your self-esteem, particularly if you’re dealing with something that also affects your health. Hair loss due to…
All a Hollywood star needs to do is be seen with a designer outfit, bag, or shoes and that company can be propelled from anonymity into the white, hot spotlight.…
Causation vs. correlation. What does that even mean? If you ask your friend who majored in philosophy for a semester-and-a-half in college, you’ll probably get an explanation that sounds more…
Odds are someone you know has a chronic, even debilitating illness, but you probably have no clue how it's affecting his/her life. Just because a condition isn't obvious doesn't mean…
Rare Diseases and Conditions Our resource section provides information on various conditions to help educate carriers of the disease as well as caretakers. # | A | B | C | …
© Copyright 2024 Patient Worthy
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
