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Paris Parents Start “Kisses for Leo” Campaign for son With Rare Infantile Neuroaxonal Dystrophy

Paris Parents Start “Kisses for Leo” Campaign for son With Rare Infantile Neuroaxonal Dystrophy

  When Deborah, a New Yorker, flew over to Paris to do an internship for an architecture office, she never knew she would be flying across the world and meeting…

Continue Reading Paris Parents Start “Kisses for Leo” Campaign for son With Rare Infantile Neuroaxonal Dystrophy
Vote to Help Family Win 50,000 Dollars for Mitochondrial Disease Research!

Vote to Help Family Win 50,000 Dollars for Mitochondrial Disease Research!

There are only 11 people in the world diagnosed with Mitochondrial Complex 1 Deficiency. Katherine Faughn, a 7-year-old living in Kentucky is one of these 11. The disease wasn't even…

Continue Reading Vote to Help Family Win 50,000 Dollars for Mitochondrial Disease Research!
This Foundation is Offering Cash Rewards for Breakthroughs in Progressive Supranuclear Palsy

This Foundation is Offering Cash Rewards for Breakthroughs in Progressive Supranuclear Palsy

According to a story from Xconomy, the Rainwater Foundation, which was first founded in the 90s by Texas billionaire Richard Rainwater, is offering cash rewards to the tune of $250,000…

Continue Reading This Foundation is Offering Cash Rewards for Breakthroughs in Progressive Supranuclear Palsy
Recent Study Highlights the Dangers of Unapproved Stem Cell Therapy

Recent Study Highlights the Dangers of Unapproved Stem Cell Therapy

According to a story from Medical Xpress, a team of researchers from the American Association of Ophthalmology recently released a study that highlights the dangers of unapproved stem cell therapy.…

Continue Reading Recent Study Highlights the Dangers of Unapproved Stem Cell Therapy
Using Telehealth as a Platform For Speech Therapy

Using Telehealth as a Platform For Speech Therapy

According to a story from Scoop Independent News, speech therapists from the Waikato District in New Zealand have been using telehealth technology to great effect in order to deliver speech…

Continue Reading Using Telehealth as a Platform For Speech Therapy
Humans May be Able to Smell Cancer- A New Way to Diagnose?

Humans May be Able to Smell Cancer- A New Way to Diagnose?

How it all started Joy Milne is a retired nurse who helped diagnose her husband with Parkinson's disease. 12 years before the official diagnosis, Joy noticed a change in her…

Continue Reading Humans May be Able to Smell Cancer- A New Way to Diagnose?
Researchers Discover Genetic Mutation Linked to Rare Diseases in French-Canadians

Researchers Discover Genetic Mutation Linked to Rare Diseases in French-Canadians

According to a story from McGill University, a group of Canadian researchers have discovered a mutation in the French-Canadian population that is linked to diseases including multiple system atrophy, Parkinson's…

Continue Reading Researchers Discover Genetic Mutation Linked to Rare Diseases in French-Canadians
How You Type on a Keyboard Could be Used to Detect Disease

How You Type on a Keyboard Could be Used to Detect Disease

According to a story from cacm.acm.org, researchers have been slowly developing an AI software that can diagnose diseases simply by watching the way in which a person types on a…

Continue Reading How You Type on a Keyboard Could be Used to Detect Disease
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You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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