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Zebrafish Lab Research Could Produce Solutions for Neurodegenerative Disease Like CMT and MS

Zebrafish Lab Research Could Produce Solutions for Neurodegenerative Disease Like CMT and MS

According to UVA Today, a University of Virginia professor, Sarah Kucenas, is studying glia cells in the brain of fish that could potentially help spear the way for the creation of…

Continue Reading Zebrafish Lab Research Could Produce Solutions for Neurodegenerative Disease Like CMT and MS
Phase 1 Trial Set to Begin For Experimental Therapy For Multiple System Atrophy and Progressive Supranuclear Palsy

Phase 1 Trial Set to Begin For Experimental Therapy For Multiple System Atrophy and Progressive Supranuclear Palsy

According to a story from businesswire.com, the company Prana Biotechnology Ltd recently announced that it is beginning the recruitment process for its Phase 1 clinical trial of its investigational product…

Continue Reading Phase 1 Trial Set to Begin For Experimental Therapy For Multiple System Atrophy and Progressive Supranuclear Palsy
Editor’s Choice: The Songs and Stories of the Rare Disease Community

Editor’s Choice: The Songs and Stories of the Rare Disease Community

TGIF, everybody! This week we're sharing music videos by a singer who raises awareness for aHUS, a journey of a dysautonomia patient, and a story about a man who was…

Continue Reading Editor’s Choice: The Songs and Stories of the Rare Disease Community
Lightning Can Knock Out Deep Brain Stimulators

Lightning Can Knock Out Deep Brain Stimulators

According to a story from Neuroscience News, the case of a woman with neck dystonia who was using a deep brain stimulation device called an implantable pulse generator (IPG) indicates…

Continue Reading Lightning Can Knock Out Deep Brain Stimulators
Patient Recall Affects Thousands After Neurologist’s Diagnoses Called in Question

Patient Recall Affects Thousands After Neurologist’s Diagnoses Called in Question

According to a story from The Independent, an NHS trust has issued a recall for around 2,500 patients after concerns were raised about the treatment they were receiving from senior…

Continue Reading Patient Recall Affects Thousands After Neurologist’s Diagnoses Called in Question
Research Has Revealed a Genetic Link to Aortic Aneurysms

Research Has Revealed a Genetic Link to Aortic Aneurysms

According to a story from news-medical.net, medical researchers have discovered that the gene called ari-1 can increase the risk aortic aneurysms. Previously, the precise genetic risk factors were not understood,…

Continue Reading Research Has Revealed a Genetic Link to Aortic Aneurysms
Scottish Mother Prepares to Obtain Cannabidiol Oil For Her Son With Rare Epilepsy

Scottish Mother Prepares to Obtain Cannabidiol Oil For Her Son With Rare Epilepsy

According to a story from edinburghnews.com, mother Karen Gray is about to seek access to cannabidiol oil for her five-year-old son, Murray, who has a rare type of epilepsy, Myoclonic Astatic…

Continue Reading Scottish Mother Prepares to Obtain Cannabidiol Oil For Her Son With Rare Epilepsy
Recent Research Has Led to a New Approach For Treating Huntington’s Disease

Recent Research Has Led to a New Approach For Treating Huntington’s Disease

According to a story from the National Center for Advancing Translational Sciences, a group of scientists from the National Institutes of Health (NIH) has unearthed a new mechanism that could…

Continue Reading Recent Research Has Led to a New Approach For Treating Huntington’s Disease
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Why Your Voice in Research Matters: Groundbreaking Studies are Changing What's Possible


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Rethinking What It Means to Live With Acromegaly


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The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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