TGIF, everybody!
This week we’re sharing music videos by a singer who raises awareness for aHUS, a journey of a dysautonomia patient, and a story about a man who was diagnosed with Parkinson’s as a child. We also have news about a startup bringing hope to those waiting for new gene therapies.
Sit back and enjoy this week’s Editor’s Choice.
“All is Not Lost”: Singer-Songwriter Reflects on Her Family’s Struggle With aHUS
Watch two music videos reflecting on one family’s experience with aHUS. Check it out here.
Man From the UK Was Only 11 When He Was Diagnosed With Parkinson’s Disease
Typically people think of Parkinson’s a disorder that affects older people. However, this man was diagnosed when he was only 11.
Read about his family’s story here.
And Not Go Weary: The Long Journey to a Potential Dysautonomia Diagnosis
PW Contributor Kim talks about the challenges she faced while looking for an accurate diagnosis.
Read about it here.
A Startup is Developing More Precise Gene Therapies
Gene therapy is a very exciting subject for rare disease patients and this new company is investigating new approaches.
Read the article here.
