I was discussing with my sister’s husband a presentation on what to do when diagnosed with a chronic illness. I was going to present this to People with Parkinson’s (PwP),…
A study published in April has found a link between neurological birth defects in infants and several neurodegenerative diseases, which may help understanding and treating diseases such as Alzheimer's, Parkinson's…
The drug, Ceriliponase alfa from BioMarin, helped in a condition that has led inexorably to disability and death: Batten Disease – specifically CLN2. Families of kids facing this prognosis are…
Mark your calendars because World Parkinson's Day is here!! Winter is (mostly) over and spring is hot (emphasis on hot) on it's heels! And, of course, April showers means we're…
Huntington's disease (HD) is one of those rare diseases that prior to diagnosis feels like a coin toss. Will you get it? Will it pass you by? It's a genetic…
Children are full of wonderment and awe. Question after question after question (yes, the list is usually long), it can be exhausting answering every inquiry, but somewhere inside each adult,…
Welcome back to Editor's Choice! This week we have an interesting take on Parkinson's treatment. We also have an empowering article from one of PW's rare disease contributors. We are all feeling the…
Most people think of Parkinson’s Disease as something that only older people get. And while this perspective might hold true in most cases, there are quite a few people who…
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