Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

1470 Search Results Found

You searched for: "study of the week"
  1. Home>
  2. Search results for “study of the week”>
  3. Page 131
Effectiveness of Prenatal Surgery for Spina Bifida Provides More Hope for Babies with Myelomeningocele

Effectiveness of Prenatal Surgery for Spina Bifida Provides More Hope for Babies with Myelomeningocele

By Natalie Homan from In The Cloud Copy Spina bifida is a condition that appears when a developing baby’s neural tube doesn’t close completely. The most severe form of spina…

Continue Reading Effectiveness of Prenatal Surgery for Spina Bifida Provides More Hope for Babies with Myelomeningocele
Baricitinib Granted Breakthrough Therapy Designation for the Treatment of Alopecia Areata

Baricitinib Granted Breakthrough Therapy Designation for the Treatment of Alopecia Areata

There are currently no FDA approved treatments for alopecia areata, a condition that sees the loss of hair all over the body. Eli Lilly and Company, working with Incyte Corporation,…

Continue Reading Baricitinib Granted Breakthrough Therapy Designation for the Treatment of Alopecia Areata
Two Pyoderma Gangraenosum Patients Have Experienced Complete Healing in New Trial

Two Pyoderma Gangraenosum Patients Have Experienced Complete Healing in New Trial

Pyoderma gangraenosum (PG) is a rare auto inflammatory disease which affects the skin. It unfortunately has no currently approved therapies. However, recent preliminary results from a Phase 2a trial have…

Continue Reading Two Pyoderma Gangraenosum Patients Have Experienced Complete Healing in New Trial
Meet Carina Imbrogno, a Rare Artist Living with Ehlers-Danlos Syndrome

Meet Carina Imbrogno, a Rare Artist Living with Ehlers-Danlos Syndrome

I was born in 1974 in Buenos Aires, Argentina to Italian immigrants. I was born with a rare genetic disorder called Ehlers-Danlos syndrome kyphoscoliosis type, but it was not diagnosed…

Continue Reading Meet Carina Imbrogno, a Rare Artist Living with Ehlers-Danlos Syndrome
Dosing Begins in Trial of NLY01, a Treatment of Parkinson’s DIsease

Dosing Begins in Trial of NLY01, a Treatment of Parkinson’s DIsease

An issue with current treatments for Parkinson's disease is that they only provide temporary relief from symptoms. There are no therapies that halt or even slow the progression of the…

Continue Reading Dosing Begins in Trial of NLY01, a Treatment of Parkinson’s DIsease
A First for CRISPR: Editing a Gene in the Retinal Cells of a Leber Congenital Amaurosis Patient

A First for CRISPR: Editing a Gene in the Retinal Cells of a Leber Congenital Amaurosis Patient

  NPR News recently featured an article announcing that scientists at Portland’s Casey Eye Institute have attempted to use CRISPR to edit a gene with the DNA still in place.…

Continue Reading A First for CRISPR: Editing a Gene in the Retinal Cells of a Leber Congenital Amaurosis Patient
A Patient With Appendix Cancer was Refused Enrollment in Five Clinical Trials

A Patient With Appendix Cancer was Refused Enrollment in Five Clinical Trials

  Todd Mercer, a fifty-two year old Michigan resident and father of two, recently called into STAT’S Podcast The Readout LOUD to discuss the difficulty he has had getting enrolled…

Continue Reading A Patient With Appendix Cancer was Refused Enrollment in Five Clinical Trials
Ethnobotanical Medicine is Proven to be an Effective Treatment for Lyme Disease

Ethnobotanical Medicine is Proven to be an Effective Treatment for Lyme Disease

Lyme disease is the most common vector-borne disease, and it has become more prominent due to climate change and urban developments spreading further into wooded areas. Treatment is typically effective…

Continue Reading Ethnobotanical Medicine is Proven to be an Effective Treatment for Lyme Disease
  • Go to the previous page
  • 1
  • …
  • 128
  • 129
  • 130
  • 131
  • 132
  • 133
  • 134
  • …
  • 184
  • Go to the next page
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info