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Two Phase 2 Clinical Studies of a Drug for Rare Epilepsies Have Been Initiated

Two Phase 2 Clinical Studies of a Drug for Rare Epilepsies Have Been Initiated

Two Phase 2 clinical trials called ‘Elektra’ and ‘Arcade’ have been initiated. They will investigate the drug OV935/TAK-935 as a potential treatment for paediatric patients with rare epilepsies. For more…

Continue Reading Two Phase 2 Clinical Studies of a Drug for Rare Epilepsies Have Been Initiated
All Aboard the Beauty Bus! An Org Providing Beauty Services for Patients

All Aboard the Beauty Bus! An Org Providing Beauty Services for Patients

Show of hands - who has ever indulged in a little beauty pampering?  A mani/pedi? A haircut? A shave?  Sure, that was a trick question - who hasn’t?! And that’s…

Continue Reading All Aboard the Beauty Bus! An Org Providing Beauty Services for Patients
Experimental Treatment for Ulcerative Colitis Shows Promise in Trials

Experimental Treatment for Ulcerative Colitis Shows Promise in Trials

According to a story from Business Wire, the biotechnology company Abivax recently released the results from its Phase 2a clinical trial. This trial was testing its investigational product ABX464 as…

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A Gene Therapy for Wet Age-Related Macular Degeneration has Progressed to Clinical Trials

A Gene Therapy for Wet Age-Related Macular Degeneration has Progressed to Clinical Trials

The United States Food and Drug Administration has awarded Fast Track Designation to an experimental gene therapy for the treatment of wet age-related macular degeneration. For more detailed information, you…

Continue Reading A Gene Therapy for Wet Age-Related Macular Degeneration has Progressed to Clinical Trials

Make Blood Cancer Visible Campaign Raises Awareness for Multiple Myeloma

According to a report by the Irish Examiner, one in three people spend at least 45 hours or more caring for a someone living with cancer. Despite this being a…

Continue Reading Make Blood Cancer Visible Campaign Raises Awareness for Multiple Myeloma
Revolutionary Injection Treats Depression in a Day

Revolutionary Injection Treats Depression in a Day

According to a report by sciencealert.com, a novel form of antidepressant recently entered review by the FDA. While the new treatment is currently being examined for its effects on postpartum…

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Cows, Cud-Chewing, and Contentment: Phyllis’s Rumination Syndrome Story

Cows, Cud-Chewing, and Contentment: Phyllis’s Rumination Syndrome Story

Three large black and white beasts rest under a shade tree to avoid the sun’s hot rays. They appear to be chewing gum, although they are really chewing their cud.…

Continue Reading Cows, Cud-Chewing, and Contentment: Phyllis’s Rumination Syndrome Story
Editor’s Choice: Rare Disease Research, Registries, and How the Might Apply to You

Editor’s Choice: Rare Disease Research, Registries, and How the Might Apply to You

Happy Friday! While the weather this week has been tumultuous, treatment news offers hope to the rare community. This week, we have an announcement about a Scleroderma registry, and PKU…

Continue Reading Editor’s Choice: Rare Disease Research, Registries, and How the Might Apply to You
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