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The Power of Perspective When Living with Pain

The Power of Perspective When Living with Pain

People often tell me how upbeat and positive I am, despite living with pain from dystonia all day, every day for the last 20 years. I would say this is accurate…

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Editor’s Choice: Finding Stillness and the Perfect Match

Editor’s Choice: Finding Stillness and the Perfect Match

Happy Thursday! We're back with a batch of new article! This week, we have another article from PW contributor, Tom Seaman, who uses his experience with dystonia to help people…

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How to Find Stillness in Your Life

How to Find Stillness in Your Life

If you are like me and probably most people, in today’s busy world it is a big challenge to be still and mentally at ease. This is such an important…

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Editor’s Choice: New Year, New Patient Stories

Editor’s Choice: New Year, New Patient Stories

Happy New Years! We're back with a batch of new article! This week, we're highlighting four stories: an interview on 20 years with dystonia, a young woman stuck in a…

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Editor’s Choice: Listening to Rare Disease Patient Stories

Editor’s Choice: Listening to Rare Disease Patient Stories

TGIF! Something we believe is that the stories of rare disease patients are vitally important. This week, we're highlighting two articles written by patients, as well as a story about…

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Editor’s Choice: Painful Lessons in Rare Disease Life and Apps that Make it Easier

Editor’s Choice: Painful Lessons in Rare Disease Life and Apps that Make it Easier

Happy Wednesday! Today, we're highlighting an article about gene therapy for MPS, followed by a story about a singer with Achalasia. After that, we have an article about app for…

Continue Reading Editor’s Choice: Painful Lessons in Rare Disease Life and Apps that Make it Easier
Editor’s Choice: Service Dogs and Legacies

Editor’s Choice: Service Dogs and Legacies

Happy Wednesday! As the new month begins, we want to spotlight four articles. First, we have an incredible story about a Cushing's syndrome survivor and advocate and her talented service…

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Editor’s Choice: John McCain’s Treatment Decision, and Judgment that Comes with Rare Disease

Editor’s Choice: John McCain’s Treatment Decision, and Judgment that Comes with Rare Disease

Happy Back 2 School Time! As the week comes to a close, we want to spotlight four articles. We have an honest piece from PW contributors Denise Crompton and Tom…

Continue Reading Editor’s Choice: John McCain’s Treatment Decision, and Judgment that Comes with Rare Disease
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The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
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