Athlete – Patient Worthy

Patient Story: Young GAA Player’s Unexpected Death Raises Awareness for Long QT Syndrome

Post author:Alyssa Stevens
Post published:May 11, 2022
Post category:Long QT Syndrome

According to a recent article, the sudden death of Cavan woman, Leah Farrelly, shocked her family, friends, and community after living with Long QT syndrome for 9 years. Long QT…

Source: Pixabay

Extreme Athlete Anthony Anzell Doesn’t Let His Hereditary Hemmorhagic Telangiectasia Slow Him Down

Post author:Meagan Fulps
Post published:January 22, 2018
Post category:Hereditary hemorrhagic telangiectasia Rare Disease

Reported by Fox 2, Anthony Anzell doesn’t let his rare genetic disease hold him back. Anthony is an extreme athlete who just swam 19 miles, the entire length of Torch…

Source: Pixabay

Cielo Honasan Won’t Let Beckwith-Widemann Slow Her Down

Post author:Samuel Sachs
Post published:November 22, 2017
Post category:Beckwith-Wiedemann Syndrome Timely

Cielo Honasan has Beckwith-Widemann Syndrome and is an amazing athlete. She's been running since she was little. She never let her disability slow her down. Read on to learn more…

Patient Story: Young GAA Player’s Unexpected Death Raises Awareness for Long QT Syndrome

Extreme Athlete Anthony Anzell Doesn’t Let His Hereditary Hemmorhagic Telangiectasia Slow Him Down

Cielo Honasan Won’t Let Beckwith-Widemann Slow Her Down

Let’s Work Together!

Keep Up to Date

Learn More