Bevacizumab is Surprisingly Effective for Treating HHT
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Bevacizumab is Surprisingly Effective for Treating HHT

This year, thanks to COVID-19, the European Hematology Association (EHA) took their annual conference online - but that didn't prevent some intriguing new insights and ideas. In a press release,…

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Outcomes Differ in Studies Conducted for Hereditary Hemorrhagic Telangiectasia (HHT)

An open letter to The Editor from Gaetani et al was recently published in the Orphanet Journal of Rare Diseases. Dr. Gaetani and associates at the Fondazione Policlinico Universitario, Rome Italy,…

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How Two Off-the-Shelf Drugs Can Help to Treat HHT
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How Two Off-the-Shelf Drugs Can Help to Treat HHT

People often expect that genetic disorders require prescribed, expensive drugs and treatments, but an article by Medical Xpress goes against this idea. Researchers at the Feinstein Institute for Medical Research…

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Beta Blocker Fails to Stop Hereditary Hemorrhagic Telangiectasia-Associated Nosebleeds
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Beta Blocker Fails to Stop Hereditary Hemorrhagic Telangiectasia-Associated Nosebleeds

According to a recent study published in Nature Research, a team of scientists studied the efficacy of timolol in treating nosebleeds associated with hereditary hemorrhagic telangiectasia. Timolol is a beta…

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Researchers Announce The Development of a Possible Treatment for Hereditary Hemorrhagic Telangiectasia
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Researchers Announce The Development of a Possible Treatment for Hereditary Hemorrhagic Telangiectasia

According to a story from news-medical.net, Mariona Graupera and Frances Viñals, along with Dr. Antoni Riera-Mestre, announced the completion of research that could lead to a new potential treatment for…

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Extreme Athlete Anthony Anzell Doesn’t Let His Hereditary Hemmorhagic Telangiectasia Slow Him Down
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Extreme Athlete Anthony Anzell Doesn’t Let His Hereditary Hemmorhagic Telangiectasia Slow Him Down

Reported by Fox 2, Anthony Anzell doesn’t let his rare genetic disease hold him back. Anthony is an extreme athlete who just swam 19 miles, the entire length of Torch…

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High School Student with Hereditary Hemorrhagic Telangiectasia Saved By Her Best Friend Performing CPR
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High School Student with Hereditary Hemorrhagic Telangiectasia Saved By Her Best Friend Performing CPR

High school student, Molly Alter, fell limp while braiding her best friend, Jackie Acierno’s hair, and it was the heroic actions of Jackie to perform CPR that saved her life,…

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Family of 27-year-old Inmate with Osler-Weber-Rendu Disease Sues Correctional Facility in Florida for Wrongful Death
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Family of 27-year-old Inmate with Osler-Weber-Rendu Disease Sues Correctional Facility in Florida for Wrongful Death

Reported by The Washington Post, six years ago Randall Jordan-Aparo was found dead after being sprayed down with a debilitating chemical when wrongfully placed into an isolation cell. According to…

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