blogging – Patient Worthy

Photo by Francisco Gonzalez on Unsplash

A 12-Year-Old Blogs His Experience with Idiopathic Intracranial Hypertension

Post author:Jessica Lynn
Post published:May 19, 2020
Post category:Intracranial Hypertension

A few years ago, Kyan Harris started experiencing some unwelcome health issues. At just nine years old, the boy wanted to play rugby with his friends. But instead, he was…

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Keep Up to Date

Learn More