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chronic disease

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Sleep Needs to be More Carefully Considered in Patient Care

Sleep Needs to be More Carefully Considered in Patient Care

  • Post author:Trudy Horsting
  • Post published:May 18, 2021
  • Post category:Rare Disease

Research has identified that individuals with sleep issues are at a higher risk for developing chronic diseases. Unfortunately, many with sleep disturbances are undiagnosed. It's estimated that between 40 and…

Continue Reading Sleep Needs to be More Carefully Considered in Patient Care
Viviendo con 2 Enfermedades Raras, este blogger es un campeón

Viviendo con 2 Enfermedades Raras, este blogger es un campeón

  • Post author:Patient Worthy Contributor
  • Post published:June 24, 2016
  • Post category:CVID/Rare Disease

Conozcamos a Yoni Maisel – un paciente con una enfermedad rara, un activista y blogger. Su meta: crear conciencia sobre las enfermedades raras y ayudar a los demás a través…

Continue Reading Viviendo con 2 Enfermedades Raras, este blogger es un campeón
Esta familia buscó 5,5 años para obtener un diagnóstico ICV

Esta familia buscó 5,5 años para obtener un diagnóstico ICV

  • Post author:Patient Worthy Contributor
  • Post published:April 28, 2016
  • Post category:CVID/Rare Disease

En el otoño de 1991, Kathy dio a luz a un hermoso niño llamado Isaac. Pero Kathy y su esposo sabían que algo no estaba bien. Isaac era su tercer…

Continue Reading Esta familia buscó 5,5 años para obtener un diagnóstico ICV
Humor sobre ICV: 10 de nuestras imágenes divertidas favoritas

Humor sobre ICV: 10 de nuestras imágenes divertidas favoritas

  • Post author:Patient Worthy Contributor
  • Post published:April 27, 2016
  • Post category:CVID/Rare Disease

Dicen que una imagen vale más que mil palabras. Desplácese a través estas imágenes para una risita. ¿Quién no ama las siestas?   Al pensar en lo imposible que era…

Continue Reading Humor sobre ICV: 10 de nuestras imágenes divertidas favoritas

Living with 2 Rare Diseases, this Blogger is a Champion

  • Post author:Patient Worthy Contributor
  • Post published:June 17, 2015
  • Post category:CVID/Rare Disease

Meet Yoni Masel- RareDisease Patient, Advocate, Activist & Blogger His goal: To raise awareness for rare diseases, and to help others by educating and sharing #PatientWorthy information. Yoni Maisel (Yonatan Maisel)…

Continue Reading Living with 2 Rare Diseases, this Blogger is a Champion

This Family searched 5.5 years for a CVID diagnosis

  • Post author:Patient Worthy Contributor
  • Post published:June 12, 2015
  • Post category:CVID/Rare Disease

In the fall of 1991, Kathy gave birth to a beautiful baby boy named Isaac. But Kathy and her husband knew something wasn't right.  Isaac was their third child. Born…

Continue Reading This Family searched 5.5 years for a CVID diagnosis

CVID Humor: 10 of our favorite funny images

  • Post author:Patient Worthy Contributor
  • Post published:June 12, 2015
  • Post category:CVID/Rare Disease

They say pictures are worth a thousand words. Scroll through these images for a chuckle. Who doesn't love naps? When thinking about how impossible your diagnosis was... Out and about…

Continue Reading CVID Humor: 10 of our favorite funny images
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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