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cystic fibrosis awareness month

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New Cystic Fibrosis Screening
Source: Pixabay.com

New Cystic Fibrosis Screening

  • Post author:Ronald Ledsen
  • Post published:May 30, 2016
  • Post category:Cystic Fibrosis/Rare Disease

In the world of diagnostics and treatment, change is usually a slow, gradual process. But so far, this is turning out to be a damn good year for anyone interested…

Continue Reading New Cystic Fibrosis Screening
Editor’s Choice: Dear Ehlers-Danlos Syndrome, You Suck!

Editor’s Choice: Dear Ehlers-Danlos Syndrome, You Suck!

  • Post author:Patient Worthy Contributor
  • Post published:May 27, 2016
  • Post category:Cystic Fibrosis/Ehlers-Danlos Syndrome/Rare Disease

Happy Memorial Day Weekend Patient Worthians! Memorial Day is the perfect opportunity to hang out with friends and family, and appreciate the times where life seems somewhat "normal". But before…

Continue Reading Editor’s Choice: Dear Ehlers-Danlos Syndrome, You Suck!
What You Need to Know About Cystic Fibrosis

What You Need to Know About Cystic Fibrosis

  • Post author:Patient Worthy Contributor
  • Post published:May 26, 2016
  • Post category:Cystic Fibrosis/Rare Disease

Patient Worthy's UK Partner Breath With Me Strawfie Challenge, wants you to know the basics about cystic fibrosis (CF) and how it affects patients and their families. So they made a rockin'…

Continue Reading What You Need to Know About Cystic Fibrosis
You’ll Never Guess What Might Impact Cystic Fibrosis Progress in Children

You’ll Never Guess What Might Impact Cystic Fibrosis Progress in Children

  • Post author:Ronald Ledsen
  • Post published:May 26, 2016
  • Post category:Cystic Fibrosis

Most parents spend at least part of their parenting life wondering, “What will I do today that permanently screws up my kid in the future?!” Which to be honest, is…

Continue Reading You’ll Never Guess What Might Impact Cystic Fibrosis Progress in Children
Cystic Fibrosis Breakthrough at Case Western

Cystic Fibrosis Breakthrough at Case Western

  • Post author:Ronald Ledsen
  • Post published:May 25, 2016
  • Post category:Cystic Fibrosis/Rare Disease

As the father of a newly-minted teenager, I’ve come to understand all too well the fleeting nature of childhood “firsts”: First words, first steps, first artwork, and other moments in…

Continue Reading Cystic Fibrosis Breakthrough at Case Western
Team GB Trampoline Squad Highlight the Difficulty of Living with Cystic Fibrosis

Team GB Trampoline Squad Highlight the Difficulty of Living with Cystic Fibrosis

  • Post author:Patient Worthy Contributor
  • Post published:May 25, 2016
  • Post category:Cystic Fibrosis/Rare Disease

Press release: 24th May 2016 Breathe With Me Strawfie Challenge The Team GB Trampoline Squad are the latest in a fast-growing line of sporting stars and celebrities to back the ‘Breathe…

Continue Reading Team GB Trampoline Squad Highlight the Difficulty of Living with Cystic Fibrosis
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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